E-Action designed for the 300,000 living with the neurological disorder1
OAKVILLE, ON, March 26, 2013 /CNW/ - Canadians with epilepsy, as well as their family, friends and caregivers, now have an exciting new information source and support network. E-Action - Taking Action Against Epilepsy strives to provide a caring and informative environment for those touched by the disorder.
E-Action includes a broad range of interactive education and information resources, including a magazine, a website, a mobile application (App), and a leader program that features 10 inspirational Canadians living well with epilepsy.
"Epilepsy associations across the country have been working tirelessly to help people with epilepsy live the best quality of life possible. E-Action is a fantastic resource to help us do just that," said Gail Dempsey, President, Canadian Epilepsy Alliance (CEA).
"The program will go a long way in raising the profile of epilepsy, and ensuring that those living with the disorder can connect with the medical community, local epilepsy agencies, and their wider communities to obtain the best care and treatment available."
E-Action is an initiative of UCB Canada Inc., a global biopharmaceutical company committed to improving the lives of people with epilepsy, one of the most common neurological disorders, affecting approximately 1% of Canadians.1
Despite the wide reach of this debilitating condition, there is a lack of awareness and knowledge about epilepsy, leading to social isolation, work barriers and relationship issues.
Awareness needs in Canada
In a survey released in 20112, just over half of the respondents said their independence is restricted, and 56% mentioned it as their number one challenge. Stigma, discrimination and the lack of awareness about epilepsy among Canadians was mentioned as the number two challenge faced by 38% of respondents, along with the impact of the disorder on their social life.
E-Action tools and programming are designed to help those with epilepsy understand and take more control of their condition and educate others.
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New resource promises information, education and inspiration when it comes to epilepsy in Canada