Family hope AT Society research can save little Taunton schoolgirl Gracie
1:00pm Tuesday 11th June 2013 in News By Phil Hill
THE family of a seven-year-old girl with a rare time-bomb condition hope a research project could buy her more time.
Gracie Potter will die young unless a cure is found for ataxia-telangiectasia, which has resulted in her needing a wheelchair and regular treatment.
Her low immune system means even a cold is serious, while she nearly died from chickenpox, is at increased risk of cancer and can only walk short distances with a frame.
Gracie, who attends Blackbrook Primary School, Taunton, needs haemoglobin pumped into her body weekly and regular antibiotics.
Her mother, Sheryl, said: A-T severely shortens people's lives.
If Gracie catches a cold, it's ten times worse and when she got chickenpox, the medicine gave her kidney failure and it was touch and go.
A-T affects her chest and lungs which could kill her.
We're living with a ticking time-bomb. She's unlikely to live much past her teens.
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Family hope AT Society research can save little Taunton schoolgirl Gracie