Muscular dystrophy petition 3K signatures short of goal

Posted: Published on March 26th, 2014

This post was added by Dr Simmons

A petition for the Federal Drug Administration to consider a new drug treatment for Duchenne muscular dystrophy is close to a critical milestone.

WLWT News 5 spoke with a Cincinnati family Monday whose 3-year-old son, Mason, has Duchenne muscular dystrophy.

The Diersing Family wanted to raise awareness about the disease and a new treatment that is up for consideration.

They asked people to sign an online petition for the FDA to consider a new experimental drug for treating the genetic disease.

I tell people that it's a mourning period that you go through. You really mourn a life that you thought was going to be one way and it's going to be drastically different, said Katherine Mayrhofer Diersing, Masons mother.

The petition is only 3,000 signatures from 100,000.

If the petition reaches 100,000 signatures by Saturday, the White House said it will take action on the proposal.

We have no time. Science is finally on our side. We have no time and the Food and Drug Administration is dragging its heels, said Dr. Benjamin Seckler, a physician who founded the national nonprofit organization fighting for DMD Charleys Fund said. Children are dying.

To sign the petition or find out more about the disease, visit TheRacetoYes.org or Twitter.

Read more:
Muscular dystrophy petition 3K signatures short of goal

Related Posts
This entry was posted in Muscular Dystrophy Treatment. Bookmark the permalink.

Comments are closed.