Breakthrough in NHS treatment battle for brave cerebral palsy suffer Ben Baddeley – Mirror.co.uk

The family of Mirror boy Ben Baddeley will be visited by NHS chiefs in their own home in a bid win vital funding for his needs.

The move follows their protest at a board meeting of leading execs this week. His campaigning parents Amy and Gary lobbied director of North Staffs Clinical Commissioning Group (CCG) Cheryl Hardisty and accountable officer Marcus Warnes.

The board meeting was delayed while they aired their concerns. And Ms Hardisty pledged to respond 'face to face' - and to see his treatment herself.

As the Baddeleys are working hard raising funds for treatment denied their son on the NHS, the CCG will visit them at home, while Ben is undergoing his specialist physio.

Amy, 32, of Silverdale, Staffs., said: "With Gary doing so much over time, they suggested coming to us. Ben's therapist is coming to do his exercises with him next week, so we can show what this is all about.

Devastated parents of cerebral palsy sufferer Ben Baddeley to confront NHS bosses over treatment row

"We were with all the NHS bosses talking for about 30 minutes. I feel so much more positive now that we are meeting them.

"It went so much better than expected."

After turning up at Tuesday's CCG board meeting with Ben, she added: "I think they finally realised that were not going away.

"I said to Ben not many kids have NHS bosses visiting them at home. We can show the work we are doing with him.

"Maybe watching what he goes through every day to progress will get to them and make a difference."

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Mirror readers helped to raise 20,000 for privately-funded selective dorsal rhizotomy (SDR) operations, cancelled by the NHS due to Tory cuts, in Feb 2014.

Family, friends, supporters and total strangers gave another 25,000 for follow up physio which enables him to walk without pain.

Ben's Mirror-backed campaign for cerebral palsy kids has gone all the way to Downing Street. He was in tears as he delivered a letter to David Cameron when he was still PM. He has also written to Theresa May - but has yet to meet her in person.

Ben's physio now costs the Baddeleys 1,400-a-month, and they are hoping for NHS help with it in future.

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Breakthrough in NHS treatment battle for brave cerebral palsy suffer Ben Baddeley - Mirror.co.uk