Max McGhie, 13, from Scotland, has Lennox-Gastaut Syndrome The rare epilepsy sends him into seizures more than 110 times a day His family are now trying to raise 65,000 for treatment in Miami, Florida
By Sara Malm
Published: 11:34 EST, 25 April 2014 | Updated: 11:34 EST, 25 April 2014
A boy suffering from more than 110 seizures a day is trying raise 65,000 to fund treatment that could eliminate his convulsions for good.
Max McGhie, 13, from East Kilbride, Scotland, has a rare form of drug-resistant epilepsy which is so severe he has almost lost the ability to speak.
Max and his family now hope that treatment in the U.S. could offer a way out, and perhaps eliminate his seizures for good.
Hoping for help: Max McGhie, pictured with his mother Seonaid, has Lennox-Gastaut Syndrome, a rare form of epilepsy which sees him suffer over 110 seizures a day
Max has Lennox-Gastaut Syndrome, an uncommon strain of the condition leaving him in such severe convulsions medication does not help.
As a result of the severity of his spasms and the cocktail of drugs he has to take, Max's speech has almost disappeared.
Max and his family, mother Seonaid, father Douglas and his ten-year-old sister Charli are trying to raise 65,000 to send him to Miami, Florida for treatment.
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Boy who suffers 110 seizures a DAY must raise 65,000 to fund epilepsy treatment before he loses the ability to talk