A brave six-year-old girl has been left unable to talk or walk independently after suffering a bleed on the brain when she was a baby.
Isabella Damree has been described by her parents as the most happy and loving little girl whose strength and determination continues to amaze them.
Isabella was born on July 19, 2015, to mum Cassie and dad Adam. Cassie opened up to MyLondon about Isabellas birth: Being pregnant, I didn't have any issues at all. There was no indication that anything was wrong from any scans.
READ MORE:'Loving and funny' girl, 4, left unable to speak after suffering stroke in mums womb
When she was born, she was whisked away from me. She was rushed to intensive care - I didnt see her for a good few hours, and that in itself was very traumatising and very scary.
I didnt know anything from that point other than she needed a bit of assistance breathing - I didn't expect there was anything wrong.
Two days after Isabellas birth, her parents were told that shed had a bleed on the left side of her brain. Later, they were told she also had cerebral palsy and a rare chromosome abnormality called 8P inverted duplication/deletion syndrome
I was devastated, Cassie explained. I was broken at that point - my whole world just caved. We honestly thought theyd got it wrong.
Then, you go through this transition as a parent where you start grieving for the child that you expected, and then accepting the child that you've got and learning to understand what she can and cant do, but what her potential is.
Today, Isabella lives in Brentwood with her mum Cassie, her two older siblings, Amee, 21, and Louis, 20, and her little sister, two-year-old Charlotte.
Isabella has been under the care of specialists at Londons Great Ormond Street Hospital, which she visits frequently for treatment and appointments.
Mum Cassie explained that Isabellas dual diagnosis of cerebral palsy and 8P has impacted her life greatly, and she is unable to live the same life as other children her age.
She is unable to walk and stand independently, crawl, and has hypotonia, meaning her muscles get very tight and she has no balance, Cassie said.
Isabella is also unable to talk and communicate with me to express herself [...] her not being able to speak to me is heartbreaking.
Although the past six years have been difficult for Cassie, she hopes speaking up about her familys experience will help other parents of disabled children.
There isn't enough knowledge or information out there for these conditions, Cassie said. I didn't know anything about hamoerages or anything like that.
Theres such a misconception out there, especially about children with extra chromosomes.
Cassie continued: Despite all her little setbacks in life, she remains to be the most happiest and loving of little girls, whose strength and determination amaze me, who fights with a smile every day.
She loves music - singing is her thing, she gets really excited and just loves it [...] she was meant to be the way she was - it was just meant to be.
Specialist treatment has significantly improved Isabellas development, including physiotherapy and a communication device called Eye Gaze, through which Isabella can communicate with her eyes.
Despite all of Izzys obstacles, one of her greatest strengths is Izzys ability to communicate using her eyes.
She has wowed us all with how quickly she is understanding and using the system for communication and expressing herself. She is a joy to watch.
Isabellas Eye Gaze is currently on loan to the family, and Cassie hopes through fundraising they can buy one of their own to help continue her development.
The national charity Just4Children has set up a fundraising page to support Isabella on her journey.
Over 1,000 has been raised so far, and every penny will go towards providing the specialist treatment, equipment and therapy Isabella needs to continue living her life to the full.
Do you want to stay up to date with the latest news, views, features and opinion from across the city?
MyLondon's brilliant newsletter The 12 is absolutely jam packed with all the latest to keep you keep you entertained, informed and uplifted.
You'll get 12 stories straight to your inbox at around 12pm. Its the perfect lunchtime read.
And what's more - it's FREE!
The MyLondon team tells London stories for Londoners. Our journalists cover all the news you need - from City Hall to your local streets, so you'll never miss a moment.
Don't skip a beat and sign up to The 12 newsletter here.
Ive had to give up my full time job to become Isabella's carer, Cassie explained. Any parent will tell you that everything is so expensive - everythings in its thousands.
Were so overwhelmed with gratitude that people would be so kind, especially during these difficult times.
I am not very good at asking for help, and I'm not very good at admitting that financially you might need help to see your child do something which could potentially change their lives.
Its lovely to think that people would give up their hard earned money and consider Isabella.
For more information on Isabellas fundraising journey or to donate, click here
For all the latest London news delivered straight to your inbox, sign up to our newsletter here
If you have a story you think we should be covering, feel free to email sylvie.wilkinson@reachplc.com to have your voice heard
Read the original:
Brave girl, 6, fights with a smile after being left unable to walk or speak - My London
- Man With Cerebral Palsy Imitates Michael Phelps Rule Yourself Video - SwimSwam [Last Updated On: March 24th, 2017] [Originally Added On: March 24th, 2017]
- Baby Connor McCue diagnosed with cerebral palsy - months after successful liver transplant - Stoke Sentinel [Last Updated On: March 24th, 2017] [Originally Added On: March 24th, 2017]
- Fundraiser for local teacher with cerebral palsy takes off - Longview Daily News [Last Updated On: March 24th, 2017] [Originally Added On: March 24th, 2017]
- Rockford athlete with cerebral palsy trains for IRONMAN World ... - Fox17 [Last Updated On: March 24th, 2017] [Originally Added On: March 24th, 2017]
- Andrew Spencer: Norwood teen with cerebral palsy found safe after ... - WCPO [Last Updated On: March 24th, 2017] [Originally Added On: March 24th, 2017]
- I'm Celebrating Cerebral Palsy Awareness Month For the First Time ... - TeenVogue.com [Last Updated On: March 24th, 2017] [Originally Added On: March 24th, 2017]
- Cerebral palsy Overview - Mayo Clinic [Last Updated On: March 24th, 2017] [Originally Added On: March 24th, 2017]
- Local 22-year-old girl with Cerebral Palsy to get free chair lift - 13newsnow.com [Last Updated On: March 25th, 2017] [Originally Added On: March 25th, 2017]
- Missing 13-year-old with cerebral palsy found safe - WLWT.com - WLWT Cincinnati [Last Updated On: March 26th, 2017] [Originally Added On: March 26th, 2017]
- Cerebral Palsy | The Mighty [Last Updated On: March 26th, 2017] [Originally Added On: March 26th, 2017]
- Cerebral Palsy Overview - Cerebal Palsy Guidance [Last Updated On: March 26th, 2017] [Originally Added On: March 26th, 2017]
- Cerebral Palsy Group Support and Resources for Cerebral Palsy [Last Updated On: March 26th, 2017] [Originally Added On: March 26th, 2017]
- Teen with cerebral palsy earns spot in state finals for track and field - 7News - WSVN-TV [Last Updated On: March 27th, 2017] [Originally Added On: March 27th, 2017]
- Parma mother of child with Cerebral Palsy gets unexplainable water and sewer bills - newsnet5.com [Last Updated On: March 27th, 2017] [Originally Added On: March 27th, 2017]
- Living with cerebral palsy - TheChronicleHerald.ca [Last Updated On: March 28th, 2017] [Originally Added On: March 28th, 2017]
- Cerebral palsy couldn't stop Gillian from finishing eight remarkable races - Belfast Telegraph [Last Updated On: March 28th, 2017] [Originally Added On: March 28th, 2017]
- Life's Equation Book Signing for National Cerebral Palsy Month - FOX31 Denver [Last Updated On: March 28th, 2017] [Originally Added On: March 28th, 2017]
- Montrose cerebral palsy sufferer reaches impasse with Angus Council - Montrose Review [Last Updated On: March 30th, 2017] [Originally Added On: March 30th, 2017]
- Living with cerebral palsy, he's also become 'The Dude': a food critic - MyAJC [Last Updated On: March 30th, 2017] [Originally Added On: March 30th, 2017]
- uOttawa students engineer foot-controlled TV converter for man with ... - Ottawa Citizen [Last Updated On: March 30th, 2017] [Originally Added On: March 30th, 2017]
- Cerebral palsy children's home receives a face-lift - Rising Sun Overport [Last Updated On: March 30th, 2017] [Originally Added On: March 30th, 2017]
- Youngstown news, Taekwondo helps 13-year-old with cerebral palsy - Youngstown Vindicator [Last Updated On: March 30th, 2017] [Originally Added On: March 30th, 2017]
- Man born with Cerebral Palsy thanks Michael Phelps for teaching ... - WOTV4women.com [Last Updated On: March 30th, 2017] [Originally Added On: March 30th, 2017]
- Cavs ticket winner gives prize to 10-year-old with cerebral palsy - fox8.com [Last Updated On: March 30th, 2017] [Originally Added On: March 30th, 2017]
- 12-Year-Old with Cerebral Palsy Meets His 'Hero' John Cena: 'My Heart Melts,' Says Dad - PEOPLE.com [Last Updated On: March 31st, 2017] [Originally Added On: March 31st, 2017]
- Norfolk family's video of son with cerebral palsy goes viral - 13newsnow.com [Last Updated On: March 31st, 2017] [Originally Added On: March 31st, 2017]
- Milton Boxer With Cerebral Palsy Remains Undefeated - CBS Boston / WBZ [Last Updated On: March 31st, 2017] [Originally Added On: March 31st, 2017]
- Chase High hosts Cerebral Palsy Awareness Day | News ... - The Daily Courier [Last Updated On: April 1st, 2017] [Originally Added On: April 1st, 2017]
- 'That Stroller Is Peyton's Life,' Special Wheelchair Stolen From Girl With Cerebral Palsy - CBS New York [Last Updated On: April 1st, 2017] [Originally Added On: April 1st, 2017]
- John Cena meets 12-year-old fan with cerebral palsy - My Fox Boston [Last Updated On: April 1st, 2017] [Originally Added On: April 1st, 2017]
- Cerebral Palsy - Cerebral Palsy [Last Updated On: April 1st, 2017] [Originally Added On: April 1st, 2017]
- Blazing New Trails: Updates in the Care of Children with Cerebral Palsy - Wayne County Journal Banner [Last Updated On: April 2nd, 2017] [Originally Added On: April 2nd, 2017]
- Cerebal Palsy An Overview of Symptoms, Causes, and ... [Last Updated On: April 2nd, 2017] [Originally Added On: April 2nd, 2017]
- John Cena meets 12-year-old fan with cerebral palsy - WPXI Pittsburgh [Last Updated On: April 3rd, 2017] [Originally Added On: April 3rd, 2017]
- Tri-Cities 12-year-old with cerebral palsy meets his hero, John Cena - WJHL [Last Updated On: April 3rd, 2017] [Originally Added On: April 3rd, 2017]
- Cord blood stem cells offer promising treatments for Cerebral Palsy [Last Updated On: April 4th, 2017] [Originally Added On: April 4th, 2017]
- This 3-Year-Old With Cerebral Palsy Is Spreading Awareness In Style - Huffington Post [Last Updated On: April 5th, 2017] [Originally Added On: April 5th, 2017]
- Govt Urged to Make Special Provision for Children with Cerebral Palsy - THISDAY Newspapers [Last Updated On: April 5th, 2017] [Originally Added On: April 5th, 2017]
- Topsham student with cerebral palsy launches road race - The Forecaster [Last Updated On: April 5th, 2017] [Originally Added On: April 5th, 2017]
- Students design 'Chandler's Chariot' for boy with cerebral palsy - WBAL Baltimore [Last Updated On: April 5th, 2017] [Originally Added On: April 5th, 2017]
- WWE star John Cena surprises young fan with cerebral palsy in heartwarming video - Globalnews.ca [Last Updated On: April 5th, 2017] [Originally Added On: April 5th, 2017]
- Cerebral Palsy (Center for Cerebral Palsy) | Gillette ... [Last Updated On: April 5th, 2017] [Originally Added On: April 5th, 2017]
- 'Cerebral palsy will never stop me from being successful' - Evening Telegraph [Last Updated On: April 7th, 2017] [Originally Added On: April 7th, 2017]
- Otte student proposes cerebral palsy awareness event | Local News ... - Blair Enterprise Publishing [Last Updated On: April 7th, 2017] [Originally Added On: April 7th, 2017]
- Cobb trampoline park adds events for those with autism, cerebral ... - Atlanta Journal Constitution [Last Updated On: April 7th, 2017] [Originally Added On: April 7th, 2017]
- The Heart of a Champion: Riverside student battling cerebral palsy gets surprise of a lifetime - San Benito News [Last Updated On: April 8th, 2017] [Originally Added On: April 8th, 2017]
- Princeton Ethics Professor Defends Woman Convicted of Raping ... - Christian News Network [Last Updated On: April 8th, 2017] [Originally Added On: April 8th, 2017]
- Nine-year-old cerebral palsy patient is guest of honour at unveiling of Co-op revamp - Nottingham Post [Last Updated On: April 8th, 2017] [Originally Added On: April 8th, 2017]
- Perth woman with cerebral palsy faces losing driver's licence after 36 years - ABC Online [Last Updated On: April 8th, 2017] [Originally Added On: April 8th, 2017]
- Cerebral palsy may be linked to birth weight - Independent Online [Last Updated On: April 8th, 2017] [Originally Added On: April 8th, 2017]
- Cerebral Palsy's Kate Laver tennis invitational - The Desert Sun [Last Updated On: April 8th, 2017] [Originally Added On: April 8th, 2017]
- Gurgaon: Doctors come together to treat Cerebral Palsy in children ... - Hindustan Times [Last Updated On: April 11th, 2017] [Originally Added On: April 11th, 2017]
- Teen takes best friend with Cerebral Palsy to prom - Story | WNYW - Fox5NY [Last Updated On: April 11th, 2017] [Originally Added On: April 11th, 2017]
- No compensation for girl left with cerebral palsy in 'tragic' home birth ... - Echo [Last Updated On: April 11th, 2017] [Originally Added On: April 11th, 2017]
- No compensation for girl left with cerebral palsy in 'tragic' home birth as top judge rules midwives 'could not have ... - Echo [Last Updated On: April 11th, 2017] [Originally Added On: April 11th, 2017]
- Man with cerebral palsy is memorable in more ways than 1 ... - Washington Times [Last Updated On: April 12th, 2017] [Originally Added On: April 12th, 2017]
- White Sox announcer gives play-by-play on finding success with ... - CNN [Last Updated On: April 15th, 2017] [Originally Added On: April 15th, 2017]
- Grandmother takes on epic Everest trek for grandson with cerebral palsy - Taranaki Daily News [Last Updated On: April 15th, 2017] [Originally Added On: April 15th, 2017]
- Rare surgery helps kids with cerebral palsy walk - KHOU [Last Updated On: April 15th, 2017] [Originally Added On: April 15th, 2017]
- Princeton Ethics Professor Defends Woman Convicted of Raping Man With Cerebral Palsy - GOPUSA [Last Updated On: April 16th, 2017] [Originally Added On: April 16th, 2017]
- Parents promote partial OHIP funded life changing cerebral palsy U.S. surgery - insideTORONTO.com [Last Updated On: April 16th, 2017] [Originally Added On: April 16th, 2017]
- Cerebral palsy girl Molly Grace helped in Facebook appeal - BBC ... - BBC News [Last Updated On: April 16th, 2017] [Originally Added On: April 16th, 2017]
- Students create cerebral palsy toothbrush - Bangalore Mirror [Last Updated On: April 18th, 2017] [Originally Added On: April 18th, 2017]
- Dad's Facebook Appeal To Find Feeding Tube For Daughter With Cerebral Palsy Is Huge Success - Huffington Post UK [Last Updated On: April 18th, 2017] [Originally Added On: April 18th, 2017]
- Cerebral Palsy can't stop me from surfing - News24 [Last Updated On: April 18th, 2017] [Originally Added On: April 18th, 2017]
- Heartland man with cerebral palsy inspires others in his quest to walk - WOWT [Last Updated On: April 19th, 2017] [Originally Added On: April 19th, 2017]
- Derby-themed party races to help cure cerebral palsy - MDJOnline.com [Last Updated On: April 19th, 2017] [Originally Added On: April 19th, 2017]
- Five-year-old with cerebral palsy making strides thanks to surgery in Ohio - WKEF ABC 22 [Last Updated On: April 20th, 2017] [Originally Added On: April 20th, 2017]
- Greek Week Raises Over $50,000 for Cerebral Palsy Awareness - University of Miami [Last Updated On: April 21st, 2017] [Originally Added On: April 21st, 2017]
- 5-year-old girl with cerebral palsy takes her first steps thanks to miracle surgery - AOL [Last Updated On: April 21st, 2017] [Originally Added On: April 21st, 2017]
- Wellington Rotary Club to post Outrun Cerebral Palsy 5K - Palm Beach Post (blog) [Last Updated On: April 21st, 2017] [Originally Added On: April 21st, 2017]
- Surgical Procedure Can Reduce Pain, Improve Mobility For Children With Cerebral Palsy - CBS New York [Last Updated On: April 21st, 2017] [Originally Added On: April 21st, 2017]
- Amazing Women Series: Mother in 'constant awe' of triplets - Canadian Jewish News (blog) [Last Updated On: April 24th, 2017] [Originally Added On: April 24th, 2017]
- 1st annual Madoc walk for cerebral palsy - www.insidebelleville.com/ [Last Updated On: April 24th, 2017] [Originally Added On: April 24th, 2017]
- Willard senior with cerebral palsy to compete in national speech tournament - Springfield News-Leader [Last Updated On: April 26th, 2017] [Originally Added On: April 26th, 2017]
- Meet Dr Amitabh Mehrotra, who defeated cerebral palsy to start a school for children with disabilities in Lucknow - YourStory.com [Last Updated On: April 26th, 2017] [Originally Added On: April 26th, 2017]
- Watch Marijuana Help This Girl With Cerebral Palsy And Autism - The Fresh Toast [Last Updated On: April 26th, 2017] [Originally Added On: April 26th, 2017]
- Young N. Idaho inventors adapt car for child with cerebral palsy ... - KTVB [Last Updated On: April 27th, 2017] [Originally Added On: April 27th, 2017]
- Patrick Barden set to complete London marathon with cerebral palsy - Metro [Last Updated On: April 27th, 2017] [Originally Added On: April 27th, 2017]
- Cerebral Palsy sufferer, Patrick Barden, from Shorne, completes London Marathon - Kent Online [Last Updated On: April 30th, 2017] [Originally Added On: April 30th, 2017]