Category Archives: ALS Treatment

Newswise In the 150 years since ALS, or amyotrophic lateral sclerosis, first came to scientific light, there remains no cure for the progressive, fatal neurodegenerative condition. But more research continues to uncover environmental contaminants insidious role in disease development Continue reading →

Sara Wheeler discovered she had a progressive neurodegenerative disease on Mother's Day 2021. Continue reading →

Infections treated in the hospital in early adulthood and mid-life may increase the risk of developing Alzheimers disease and Parkinsons disease later in life. Continue reading →

Tiziana Life Sciences Ltd. - Prestigious ALS Association grant awarded to BWH to study the utility of an intranasal anti-CD3 monoclonal antibody in an animal model of Amyotrophic Lateral Sclerosis - NEW YORK, Sept. Continue reading →

North Vancouver's Greg Gowe built an organization tasked with ending ALS, all while battling against the devastating disease himself Greg Gowe was adamant that he was going to compose his final tweet, even though it took all his remaining strength to do so. The North Vancouver man had built a strong following on Twitter since his 2019 diagnosis with amyotrophic lateral sclerosis, the progressive nervous system disease that affects nerve cells in the brain and spinal cord, causing loss of muscle control Continue reading →

Boston Bruins legend Ray Bourque was born Dec. 28, 1960.On the same day in 1984, Pete Frates was born.The inspiration for the ALS ice bucket challenge, Pete Frates was famously the captain of the Boston College baseball team, but his mother Nancy Frates said he loved hockey too."Pete was on skates by age four or five, and his hero was the captain of the Bruins," she said.Bourque remembered a meeting he had with Pete Frates shortly after he was diagnosed with ALS.We were talking about how can we raise money for ALS," Bourque said. "You just couldn't help yourself to be inspired and to be so impressed with this young man."His words, Nancy Frates said Continue reading →

After my husband, Jeff, died from ALS in 2020, I found a video hed taken by mistake right around the time of his diagnosis. Hed left his phone on and unintentionally recorded three minutes of his expression while sitting in our yard in the November cold, drawing on a cigar and staring, squinting, at the water. Continue reading →

By Juli McDonald Updated on: September 16, 2022 / 7:04 AM / CBS Boston Speech therapist diagnosed with ALS continues to teach ACTON - Together at their dining room table, Belinda Paul sees her team. There's so much love in this Acton home, and laughter; A family to quite literally, lean on Continue reading →

A pediatrician for 40 years, James Plews-Ogan, MD, took care of many children with rare diseases. They had complex medical needs and often, disabilities Continue reading →

CAMBRIDGE, Mass.--(BUSINESS WIRE)--Amylyx Pharmaceuticals, Inc. (Nasdaq: AMLX) today announced that the U.S. Food and Drug Administrations (FDA) Peripheral and Central Nervous System Drugs Advisory Committee (PCNSDAC) will reconvene to review the New Drug Application (NDA) for AMX0035 (sodium phenylbutyrate and taurursodiol [also known as ursodoxicoltaurine]) for the treatment of amyotrophic lateral sclerosis (ALS). Continue reading →