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Category Archives: Cerebral Palsy Treatment

Norwich family’s struggle to fund vital treatment for their son

Posted: Published on July 29th, 2012

Taverham nine year old James Burrows who has Hydrocephalus Cerebral Palsy pictured with his parents Trish and Michael. Photo: Steve Adams By joe wilkes Saturday, July 28, 2012 4:30 PM A family have told of their struggle to find the money to help their young son overcome a condition which has left him unable to walk unaided. To send a link to this page to a friend, simply enter their email address below. The message will include the name and email address you gave us when you signed up. Send link To send a link to this page to a friend, you must be logged in. "We just want to do whatever we can to help him become more of an independent young man in the years to come." Trish Burrows. Nine-year-old James Burrows, of Argyle Crescent in Taverham, has cerebral palsy, which means he needs a frame to walk and has to have a drain from his head. Read more: Norwich family’s struggle to fund vital treatment for their son … Continue reading

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Charity's 'special connection' with GB athlete

Posted: Published on July 27th, 2012

advertisement A PARALYMPIC athlete from the 2012 GB team has been made a vice-president of The Children's Trust in Tadworth. Sprinter Sophia Warner, who has cerebral palsy, explained she has a special connection to the trust and her treatment helped her get where she is today. Sophia, from Dorking, said: "It's a charity that is very close to my heart as it is where I had my treatment as a child. Little did I know then what that treatment would ultimately help me achieve." The 38-year-old mum-of-two received specialist treatment and therapy at the trust in the 1980s when it was part of Great Ormond Street Hospital. She said: "I have always remembered my visits as a child with great fondness, as there was and still is a lovely, warm atmosphere. Now it's time for me to give something back to The Children's Trust and help others reach their full potential. Im on a mission to educate people about cerebral palsy. Attitudes to disabled athletes have moved on a bit, but so little is known about cerebral palsy. Sophia only started her training when she was 19 and following her graduation from University, she successfully carved a career in marketing … Continue reading

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'Special connection' between GB athlete and Tadworth charity

Posted: Published on July 25th, 2012

'Special connection' between GB athlete and Tadworth charity By Angela Brooks July 25, 2012 A PARALYMPIC athlete from the 2012 GB team has been made a vice-president of The Children's Trust in Tadworth. Sprinter Sophia Warner, who has cerebral palsy, explained she has a special connection to the trust and her treatment helped her get where she is today. Sophia, from Dorking, said: "It's a charity that is very close to my heart as it is where I had my treatment as a child. Little did I know then what that treatment would ultimately help me achieve." The 38-year-old mum-of-two received specialist treatment and therapy at the trust in the 1980s when it was part of Great Ormond Street Hospital. She said: "I have always remembered my visits as a child with great fondness, as there was and still is a lovely, warm atmosphere. Now it's time for me to give something back to The Children's Trust and help others reach their full potential. Im on a mission to educate people about cerebral palsy. Attitudes to disabled athletes have moved on a bit, but so little is known about cerebral palsy. Sophia only started her training when she was 19 … Continue reading

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What's Up Doc: Cerebral palsy affects 3 per 1,000

Posted: Published on July 25th, 2012

Q: What exactly is cerebral palsy? A: Cerebral palsy (CP) is a general term that describes disorders of movement, muscle tone, gait and/or posture that are caused by a primary brain dysfunction prior to age three. CP is a non-progressive condition; the brain dysfunction does not typically get worse over time. It is the most common motor disability in young kids, affecting about 3 per 1000. The development of the human brain and nervous system begins just a couple of weeks after conception and continues for years after birth. CP can be caused by anything that causes the brain to develop abnormally; it is classified by the symptoms and limbs affected: - Spastic CP, accounting for over three quarters of cases of CP, manifests with stiff, tight, rigid and/or poorly stretchable muscles. It is called spastic hemiplegia if it affects one side of the body, spastic diplegia (paraplegia) if the legs are affected more than the arms, and spastic quadriplegia if all four limbs are affected. - Dyskinetic CP is manifested by abnormal body movements. - Ataxic CP is when walking coordination (gait) is abnormal. - Mixed CP is a mixture of any of these. The symptoms from CP range … Continue reading

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Dr. Jeff Hersh: Cerebral palsy affects 3 per every 1,000

Posted: Published on July 25th, 2012

Q: What exactly is cerebral palsy? A: Cerebral palsy is a general term that describes disorders of movement, muscle tone, gait and/or posture that are caused by a primary brain dysfunction prior to age 3. CP is a non-progressive condition; the brain dysfunction does not typically get worse over time. It is the most common motor disability in young kids, affecting about 3 per every 1,000. The development of the human brain and nervous system begins just a couple of weeks after conception and continues for years after birth. CP can be caused by anything that causes the brain to develop abnormally; it is classified by the symptoms and limbs affected: - Spastic CP, accounting for over three-quarters of cases of CP, manifests with stiff, tight, rigid and/or poorly stretchable muscles. It is called spastic hemiplegia if it affects one side of the body, spastic diplegia (paraplegia) if the legs are affected more than the arms, and spastic quadriplegia if all four limbs are affected. - Dyskinetic CP is manifested by abnormal body movements. - Ataxic CP is when walking coordination (gait) is abnormal. - Mixed CP is a mixture of any of these. The symptoms from CP range from … Continue reading

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Study finds pregnancy and weed a dangerous mix

Posted: Published on July 19th, 2012

A study from Adelaide University has found smoking marijuana around the time of pregnancy more than doubles the chance of a premature birth. Researchers have released the results of a study into risk factors that affect a woman's likelihood of going into early labour - including smoking marijuana before conception. It is widely known that smoking cannabis during pregnancy increases the risk of giving birth before 37 weeks, but Professor Claire Roberts from Adelaide University's Robinson Institute says this study is the first to recognise that smoking the drug before conception also has an effect. "If you think about it, a pregnancy starts with an egg meeting a sperm and the quality or the health of your eggs is going to depend a lot on what you did prior to conception," she said. "Certainly other work that we're doing and that other groups are doing is showing that pre-conception is a very important time in determining outcome for pregnancy." Professor Roberts says women who smoke marijuana are also more likely to smoke cigarettes and that adds to the risk. "Women who smoke marijuana either prior to or during pregnancy may also do other risky behaviours, like maybe drink alcohol and … Continue reading

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Special issue of Cell Transplantation features research presented at IANR

Posted: Published on July 18th, 2012

Public release date: 18-Jul-2012 [ | E-mail | Share ] Contact: David Eve celltransplantation@gmail.com Cell Transplantation Center of Excellence for Aging and Brain Repair Putnam Valley, NY. (July 18 , 2012) Meeting in Amman, Jordan April 27-30, 2011, members of the International Association of Neurorestoratology (IANR) presented research aimed at improving the lives of people with neurological conditions such as amytrophic lateral sclerosis (ALS), spinal cord injury, cerebral palsy, stroke and muscular dystrophy through a variety of therapies, including cell transplantation. The field of neurorestoratology has emerged as a new discipline in neuroscience, exploring the impact of cell transplantation and other factors on neurological recovery. This special issue of Cell Transplantation (21:Suppl 1), now freely available on-line at http://www.ingentaconnect.com/content/cog/ct/2012/00000021/a00101s1, is devoted to studies presented at the IANR. According to Hongyun Huang, MD, PhD, founding president of IANR, the articles selected from the papers presented in 2011 appearing in the special issue of CELL TRANSPLANTATION focus on the results of clinical translational medicine that provide evidence for successful neurorestoration in human patients. "Obstacles hindering the promising methods of neurorestoratology from being translated from the bench to the bedside include political, religious, ethical, economic and scientific factors working often in combinations," said … Continue reading

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North mum's call for US 'miracle' op to be on NHS

Posted: Published on July 13th, 2012

CALLS have been made for miracle surgery that helped North East youngsters with cerebral palsy walk to be more readily available in the UK. Families say more expertise and funding should be invested in the pioneering procedure called selective dorsal rhizotomy (SDR) in this country so children dont have to travel to America, where the surgery has been carried out with a high success rate for many years. The complex operation, which involves electrically stimulating muscles to the spine, is only available in a handful of NHS hospitals, meaning that scores of young cerebral palsy sufferers who want to be in with a chance of walking have to look further afield. This has seen a string of families from across the region kick-start their own campaigns to raise money to travel to the States for the procedure. Sharon Brown, mum of seven-year-old Callum, who has diplegic cerebral palsy, has worked tirelessly to raise 50,000 towards getting her little boy to St Louis Childrens Hospital in Missouri for the procedure, which she hopes will take place early next year. But Sharon, from Seaton Sluice, Northumberland, says life would have been a lot easier if the same level of expertise were on … Continue reading

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Chalfant: Center's commitment to children continues

Posted: Published on July 11th, 2012

During the first half of the 20th century, parents of disabled children faced incredible difficulties. Lack of understanding of the causes of disabling conditions such as cerebral palsy and polio caused fear of those suffering from those conditions. Disabled persons were often relegated to life in institutions where they remained segregated from society. Parents who wished to keep their children at home were faced with a lack of medical and educational resources. In 1919, Edgar Allen of Elyria, Ohio, established the National Society for Crippled Children. Concerned citizens in Missouri soon established a Missouri Society, and in 1928, the Sedalia Rotary Club worked to establish a chapter in Pettis County. Dr. F.C. Cater, president of the Pettis County Chapter of the Missouri Society for Crippled Children, commented on the reactions of others to disabled children when he noted that parents are somewhat sensitive about their [disabled] children although there is no need to be. Cater further pointed out that because of the lack of services for disabled children, most Sedalians were unaware of their existence. In 1928, the Pettis County Chapter of the Missouri Society for Crippled Children began a deliberate and systematic effort to identify disabled children in Pettis … Continue reading

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New hope for children with cerebral palsy

Posted: Published on July 5th, 2012

For the first time, doctors are studying a treatment that has the potential to stop cerebral palsy in its tracks More than 760,00 children and adults are living with cerebral palsy. It is a group of disorders that can impair brain and nervous system functions. Patients may have issues with movement, learning, hearing, seeing, and thinking. It is caused by injuries or abnormalities in the brain. Researchers from Duke University Medical Center are studying whether infusions of a child's own cord blood could help improve the symptoms of cerebral palsy. "If this is beneficial, it could really change the lives of those children," said Dr. Joanne Kurtzberg of Duke University Medical Center. The theory is cord blood cells can decrease inflammation, coax normal cells into fixing damaged tissues and grow into new cells. "Cord blood cells can graft and grow into some types of brain cells in the brain," said Kurtzberg. Patients in a phase-one trial reported improved speech, mobility and movement. Weston Stephenson's parents banked his umbilical cord blood when he was born. He received his first infusion as part of the clinical trial. "My hope is that we see a miracle, really," said Weston's mother, Jenny Stephenson. Kurtzberg's … Continue reading

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