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Category Archives: Cerebral Palsy Treatment

CP Time Management Challenges: Here’s What Works for Me – Cerebral Palsy News Today

Posted: Published on August 27th, 2017

From the moment you entered grade school, youve been told how important it is to be organized. Later, your teachers added a task and told you that being organized also meant knowing how to manage your time. Learning time management is such an important part of learning how to function successfully in life, and it is difficult for everyone. But, from the outside, most people make it look so easy. It seems like they dont juggle half as many things as you they go to work or school only, they dont have multiple doctor appointments a week or therapies they attend. I have been interested in time management for the better part of the past five years. Trying to accomplish any goal while battling an illness or multiple illnesses is not for the faint of heart and every second counts. I have tried so many things, from GTD brain dumping techniques, living a strictly digital life,paper to-do lists, creating a daily schedule for myself and all left me feeling defeated. I started back at square one. I found during all of this trial-and-error period that I liked paper planning and writing down things. I also knew that I liked apps. … Continue reading

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Fashion Blogger Chloe Miles To Shave Head And Raise 30k For Little Boy With Cerebral Palsy – HuffPost UK

Posted: Published on August 27th, 2017

A fashion blogger who lost her brother, who had a rare genetic disorder, is set to shave her head so a young boy with cerebral palsy can access potentially life-changing treatment. Chloe Helen Miles, 21, from Aldershot, Hampshire, hopes to raise a staggering 30,000 so Enzo Thompson, four, can access stem cell treatment and liveas independently as possible. I knew straight away that I wanted to shave my hair for Enz, for a chance at a better quality of life for such a kind and funny boy, she told HuffPost UK. And I know my brother wouldve wanted me to. Chloe Miles Chloe was left distraught when her brother Dylan died at the age of 17. He lived with Wolf Hirschhorn Syndrome, a rare genetic disorder which left him severely disabled. One year after his death, she began volunteering with Sebastians Action Trust- a charity supporting the families of seriously ill children,which had helped Chloe and her family when Dylan was alive. The charity introduced her to Enzo and his family in November 2015 and from there, a beautiful relationship blossomed. I was a little worried that meeting Enzo for the first time would be difficult and I did wonder … Continue reading

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Callous thief stole from woman with cerebral palsy and another, 77, who could only move with oxygen – Derby Telegraph

Posted: Published on August 27th, 2017

A thief and fraudster from Derbyshire who deliberately targeted elderly or vulnerable victims has been jailed for two years. Kayleigh Bradshaw moved herself in to one mans home for two days knowing he had alcohol problems and suffered from bi-polar disorder. She ate his food, drank his booze and stole 330 of goods from him. That experience left the man needing hospital treatment for anxiety. Bradshaw then moved on to twice steal cash from a 77-year-old woman who could only get around with the help of oxygen. Another victim, a woman in her 40s who suffered from cerebral palsy, was targeted by the 37-year-old who stole her purse from a locker at a public swimming pool. And Bradshaw also stole a purse from the handbag of a woman who had put it on her sons pushchair at a church. Jailing her at Derby Crown Court for two years, Judge Robert Egbuna said: You were aggressive in your approach to obtaining money, it was planned and you targeted elderly or vulnerable people. You preyed on vulnerable members of society who require our protection and assistance. You caused them untold anxiety and you were persistent in committing your callous crimes. You knew … Continue reading

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Public hearing on Lapel rezoning tonight – Pendleton Times-Post

Posted: Published on August 17th, 2017

LAPEL The Giving Hope Foundation founder Joe Shetterley presented plans for a community center designed to treat people of all ages with special needs to the Lapel Town Council on July 20. The council has scheduled a public hearing for today, Thursday, Aug. 17, to discuss rezoning 40 acres at County Road 650 West and State Road 13 to general industrial to allow his plans to move forward. The land was donated to Shetterley with this project in mind. He is working with the Ball State University Architecture Department and St. Vincent Hospital on the design of a 125,000-square-foot facility. The $20 million facility could serve up to 500 people, with Shetterley hoping to begin the two-year construction project in 2018. The Giving Hope Foundation is a family health institute center whose sole purpose is supporting special-needs members and their families, Shetterley said. The center will be open 24 hours a day, seven days a week, to special-needs members regardless of age. Shetterley said the center will use cutting-edge technology for both care of people with a wide array of special needs including autism, cerebral palsy, and Down Syndrome and for research into many mental afflictions. He said it also … Continue reading

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Outsourcing proposed to trim Lodi budget – Lodi News-Sentinel

Posted: Published on August 16th, 2017

With the City of Lodi already struggling to balance budgets, local leaders are exploring ways to make sure the city stays solvent with soaring pension costs expected to eat up bigger chunks of the general budget in the coming years. Back in June, when the City Council approved the 2017-18 budget, Councilman Bob Johnson suggested that the city consider outsourcing some of its services to save money, and he reiterated the idea at a recent council meeting. An online service is needed to view this article in its entirety. You need an online service to view this article in its entirety. Need an account? Create one now. kAm(92E x AC@A@D65 H2D 9:C:?8 2 4@?DF=E2?E H9@ 4@F=5 4@>6 😕 2?5 =@@< 2E 2== @7 @FC 56A2CE>6?ED 2?5 7:?5 @FE :7 2?J @7 E96> >256 2?J D6?D6 7@C @FED@FC4:?8[ y@9?D@? D2:5]k^Am kAmy@9?D@? DF886DE65 E92E :7 H@C< :D 4@?EC24E65 @FE[ E92E 2 4@?DF=E2?E 92?5=6 E96 @FED@FC4:?8 3642FD6 DE277 H@F=5 92G6 6>@E:@?2= 2EE249>6?ED E@ 76==@H 6>A=@J66D]k^Am kAmqJ 92G:?8 2? @FED:56C 5@ :E[ :E 364@>6D G6CJ @3;64E:G6 2?5 E96 D6?D:E:G:EJ >2J 36 =6DD6?65[ y@9?D@? D2:5]k^Am kAmy@9?D@? ?@E65 E92E E96 4:EJ 2=C625J @FED@FC46D E96 vC2A6{:?6 EC2?DA@CE2E:@? D6CG:46D 2?5 25565 E92E DEC66E >2:?E6?2?46 😕 s@H?E@H? {@5: 😀 … Continue reading

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Robotic Training Method May Improve Gait, Posture in Kids with Cerebral Palsy, Researchers Say – Cerebral Palsy News Today

Posted: Published on August 15th, 2017

A new robotic training method targeting posture and crouch gait in children with cerebral palsy (CP) was developed by a research team from theSchool of Engineering and Applied Science at Columbia University. In a pilot study titled Robot-driven downward pelvic pull to improve crouch gait in children with cerebral palsy, published in the journalScience Robotics, team leader Sunil Agrawal described how his teams robotic training system was engineered to improve muscle strength and coordination. One of the major reasons for crouch gait is weakness in soleus muscles, Agrawal, a professor of mechanical engineering and of rehabilitation and regenerative medicine, said in a news release. Thesoleus isan extensor muscle from just below the knee to the heel that plays a key role in preventing the knee fromcollapsing and providing propulsion during movement, or gait cycles. We hypothesized that walking with a downward pelvic pull would strengthen extensor muscles, especially the soleus, against the applied downward pull and would improve muscle coordination during walking, Agrawal said. We took an approach opposite to conventional therapy with these children: Instead of partial body weight suspension during treadmill walking, we trained participants to walk with a force augmentation, he said. Knowing that the soleus muscle … Continue reading

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Family hopes to crowd-fund medical trial of cerebral palsy therapy with Kokoda Track mission – ABC Online

Posted: Published on August 14th, 2017

Updated August 14, 2017 17:31:02 How far could you carry a six-year-old? To the park? To the shops? What about along the entire Kokoda Track? Michael Shearman is going to do just that. His son Max weighs 27 kilograms. The Kokoda Track stretches 96 exhausting kilometres. So why would Michael carry Max that far? Max was diagnosed with cerebral palsy when he was an infant. It's a brain disorder that affects about 34,000 Australians. Symptoms range from physical weakness in one limb through to an almost complete lack of voluntary movement. The diagnosis was devastating for Max's parents, Michael and Claire. "I remember just that breathlessness of going, 'What does this mean?' first," Claire tells 7.30. "They were talking wheelchairs. They didn't know if he'd be able to talk, how his brain was going to be functioning and what the outcomes were going to be." The Shearmans explored therapies and treatments to try to improve Max's mobility and muscle development, ranging from botox and bobath therapy to physiotherapy and yoga. They say there were breakthroughs from time to time, but nothing seemed to provide a lasting improvement. Then they came across the TheraSuit. "There was a program on one of … Continue reading

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Stem Cell Registry Will Facilitate Finding Donors – Financial Tribune

Posted: Published on August 12th, 2017

One of the obstacles on the way of successful stem cell transplant is problems in finding a good match for the recipient.There is only 25% chance that siblings offer one another a human leukocyte antigen match (or simply a tissue type match) while in 75% of cases patients need to find a match from unrelated donors, Dr. Azim Mehrvar, head of MAHAK Specialized Pediatric Cancer Hospital, was quoted by ISNA as saying.Last month, MAHAK opened a stem cell registry to facilitate the search for donors who are a match to blood disorder patients the first of its kind in Iran.The best transplant outcome happens when a patients HLA and the donors HLA closely match. HLA is a protein or marker found on most cells in a body and is used to match with a donor for bone marrow or cord blood transplant.All people between the ages of 18 and 50 can come to the center and register to help children suffering from cancer.The process is easy: Once an applicant is registered, his/her cheek cell sample (buccal swab) is sent for HLA typing, the result of which is stored in the registry. The process takes only a few minutes.In the future … Continue reading

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Music festival to help raise cash for youngsters’ treatment – Rotherham Advertiser

Posted: Published on August 11th, 2017

Festival committee members, (from left to right), Cllr Gill Shaw, Cllr Peter Blanksby and Cllr Wendy Fowkes with Daisy Garforth, dad, Lee and mum, Hollie. 171296-4 A TWO-day music festival will raise money to treat two young girls with cerebral palsy from the same village. The charity event on Wales Recreation Ground will help fund treatments for seven-year-old Daisy Garforth and Taylor Dobbs (3). A variety of music acts will be performing in the marquee between 6pm and 11.30pm on Friday and from noon until midnight on the Saturday. Cash raised will help fund therapy for both Kiveton Park girls, whose brain conditions were caused by complications at birth. Daisy was born with cord presentation and was starved of oxygen for about 20 minutes, resulting in brain damage which caused her athetoid dystonic cerebral palsy. Mum Hollie (32) said: It means her muscles can be very, very floppy or very, very tight and it affects all four limbs. Several of Daisys treatments are unavailable on the NHS, including the three times a week she has hyperbaric oxygen therapy in Leeds. Since Daisys been going for oxygen therapy in the last 18 months, she hasnt suffered a cold, chest infection or … Continue reading

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Judge dismisses suit over disabled kids’ treatment under Fla. Medicaid system; case heads to appeal court – The Ledger

Posted: Published on August 11th, 2017

Federal judge dismisses suit against care provided by Florida's Medicaid system TALLAHASSEE A legal battle will continue about whether Florida's Medicaid program has provided proper services to children with severe medical conditions. Attorneys for children and the U.S. Department of Justice gave notice this week that they will take the five-year battle to the 11th U.S. Circuit Court of Appeals in Atlanta. The move came after a federal district judge in June sided with the state Agency for Health Care Administration and the state Department of Health, and dismissed the case. The case has centered on allegations the state violated the Americans with Disabilities Act and other laws by failing to provide services that would allow medically complex children to stay in their homes and communities. It was filed on behalf of children who had been placed in nursing homes or who were considered at risk of going into such facilities. Senior U.S. District Judge William Zloch in the June ruling approved the recommendations of a magistrate judge, who focused on changes the Medicaid program had made. U.S. Magistrate Judge Patrick Hunt wrote that the plaintiffs could no longer show they were in danger of being denied medically necessary private-duty … Continue reading

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