Category Archives: Cerebral Palsy Treatment

The family of Mirror boy Ben Baddeley will be visited by NHS chiefs in their own home in a bid win vital funding for his needs. The move follows their protest at a board meeting of leading execs this week. His campaigning parents Amy and Gary lobbied director of North Staffs Clinical Commissioning Group (CCG) Cheryl Hardisty and accountable officer Marcus Warnes. The board meeting was delayed while they aired their concerns. And Ms Hardisty pledged to respond 'face to face' - and to see his treatment herself. As the Baddeleys are working hard raising funds for treatment denied their son on the NHS, the CCG will visit them at home, while Ben is undergoing his specialist physio. Amy, 32, of Silverdale, Staffs., said: "With Gary doing so much over time, they suggested coming to us. Ben's therapist is coming to do his exercises with him next week, so we can show what this is all about. Devastated parents of cerebral palsy sufferer Ben Baddeley to confront NHS bosses over treatment row "We were with all the NHS bosses talking for about 30 minutes. I feel so much more positive now that we are meeting them. "It went so much … Continue reading →

Editor's note: the following story has been edited to clarify a statement regarding how the incumbent representative reacted to LaForest's plans to run for office. Tony LaForest, 51, of Jackson announced his candidacy Thursday for state representative in District 146 as a Republican, and the issues that mean the most to him are concerns of personal relevance. LaForest said he had been in contact with state Rep. Donna Lichtenegger about running for her seat after she reached her term limit in 2018. LaForest said Lichtenebber was "very happy with it." LaForest served 11 years in the Marine Corps, first as a military police officer and then as infantry. His spine was crushed during the Gulf War in 1991, and he is a 100 percent disabled veteran with degenerative joint disease. LaForest spent years working through Veterans Affairs paperwork on his own case. Since 2014, he has helped other veterans try to get the care they need. A Korean war veteran believed LaForest saved his life, LaForest said. He said he encouraged the man to get treatment for an injury sustained during his service. A doctor ended up diagnosing the man with pancreatic cancer while treating him for the leg injury, … Continue reading →

The founder of an app to help people with Parkinson's Disease has been crowned Ireland's best young entrepreneur. 26 year old Physiotherapist Ciara Clancy, developed Beats Medical which emits a beat or soundwave from your smartphone to help control movement and speech. She will now receive a 45,000 investment through the Local Enterprise Offices to help develop her company further. Minister Mary Mitchell O Connor and Minister Pat Breen announced the winner of Irelands Best Young Entrepreneur (IBYE) competition at the Google European HQ in Dublin earlier today. The competition, which is supported by the Department of Jobs, Enterprise and Innovation and Enterprise Ireland and run by the 31 Local Enterprise Offices, attracted entries from over 1,800 18-to-35-year-olds and showcased some of the countrys best and brightest business talent. In addition to becoming Irelands Best Young Entrepreneur, Ciara Clancy also won the Best Established Business category. The Beats Medical app provides individually tailored physiotherapy, speech and language and occupational therapy exercises through mobile phones. Ciara Clancy said that her aim is to continue supporting more and more people with Parkinsons around the world, as an estimated 10 million people currently live with the disease. She is also developing digital treatments … Continue reading →

The devastated parents of Mirror campaign boy Ben Baddeley will confront NHS chiefs at the centre of the row over his treatment on Tuesday. Cerebral palsy sufferer Ben, 12, was due to see a NHS specialist about his vital physiotherapy treatment - only for his appointment to be cancelled at the last minute. North Staffs Clinical Commissioning Group promised parents Amy and Gary he would be assessed. Then Dr James Palmer, Clinical Director for NHS Services for NHS England, wrote to them to state our local offices were unable to find any contact with you. Yet the Baddeleys met North Staffs CCG last JUNE - and had been in regular contact for nine months. Cheryl Hardisty, their director of commissioning - who promised to resolve this long standing issue - is set to attend a board meeting on Tuesday at the YMCA in Stoke. Amy, 32, intends to be there in order to confront her face to face. She said: We finally received a response from Cheryl but have been passed to a patient services team. "Even the public are sending in letters on our behalf. We will hold a peaceful protest. Amy and husband Gary, 40, of Silverdale, Staffs., … Continue reading →

Updated / Tuesday, 28 Feb 2017 17:05 University Hospital Galway has apologised to the parents of a six-year-old girl who was severely brain damaged after a delay in treating her for jaundice soon after her birth in 2011. Lawyers for Sadhbh Farrell said a simple and inexpensive treatment for the condition was given too late. The court approved an interim settlement of 2.6m in the case taken on behalf of Sadhbh through her parents Niamh and Shane Farrell from Killeeneen, Craughwell, CoGalway. In a letter to the family the hospital expressed its "deepest regret" and apologised "for the failings of care provided to Sadhbh in the week following her birth". It said: "We do not underestimate how difficult and traumatic this has been for you and your families and the challenges that you and your families have faced as a result of the failings in treatment and care provided to Sadhbh." Sadhbh was born on 23 January 2011 at 36 weeks' gestation in good condition weighing 3.2kg. About 12 hours after she was born, her mother Niamh, who had two older children, was concerned about jaundice. Sadhbh was seen by a paediatrician 11 hours later but no further tests were … Continue reading →

A Toronto father whose son had surgery to treat his cerebral palsy says the procedure is readily available here in Canada and parents should make sure which operation is right for their childbefore heading to the U.S to have it done at a much higher cost. Demetrio Bruno's son Gianfranco had Selective Dorsal Rhizotomy (SDR) surgery at the Shriners Hospital-Canadain Montreal. The eight-year-old has spastic diplegia cerebral palsy, which causes muscle stiffness mainly in his legs. Bruno saida year and a half after SDR surgery, his son no longer needs a walker or canes to get around and can climb stairs normally. Gianfranco Bruno had Selective Dorsal Rhizotomy (SDR) surgery, a treatment for Cerebral Palsy, at the Shriners Hospital-Canada in Montreal. He now walks independently without a walker or cane. (Demetrio Bruno) "He's walking independently now," Bruno told CBC Toronto. "Two weeks ago we were in Ottawa at the Rideau Canal and he went skating for the first time." Bruno said initially he was under the impression that there was only one place his son could have SDR surgery the St. Louis Children's Hospital in Missouri. But he did some research and found out hospitals in Montreal, Vancouver, Seattle, Boston … Continue reading →

16:30 17:55 Thursday 02 March 2017 It was a mothers instinct which told Fran Heriot that something was wrong with her daughter Halle. And not even a GPs assertion that her toddler was a late developer could convince her otherwise. Fran, of Fenside Drive, Newborough, was concerned that Halle was not starting to walk and talk like other children her age, and after pleading for help her daughter was sent for an MRI scan which confirmed she had cerebral palsy, bilateral spastic diplegia. But any relief for Fran at receiving a diagnosis was overshadowed by the shock at hearing that her small girl, who is now just four, would need constant care and medication for her muscle stiffness and spasms. It was a real shock. Its very had to process when someone tells you your child has a condition thats not curable and thats life-long. It took us a few days and weeks to compute that, she said. Fran (36) and Halles dad Tim (40) spent months researching possible treatments for Halle when they came across surgery called selective dorsal rhizotomy. The operation would help rid Halle of the pain she suffers on a daily basis and maybe allow her … Continue reading →

TE AHUA MAITLAND Last updated16:25, March 3 2017 CHRISTINE CORNEGE FAIRFAX NZ Kate Harpur, 19, wants surgery in the U.S to help her walk without assistance. ACC won't cover the surgery, so she is fundraising at her local gym, with a biking event. Teenager Kate Harpur needs a walking stick to get around. Hercerebral palsy causesher to havespasms in her legs.The 19 year old wants to have surgery in the United States by a specialists inSelective Dorsal Rhizotomy (SDR), aprocedure that will reduce spasticity and improve her walking, sitting, standing and balance. It will cost around $100,000, including the surgery, flights and accommodation. And she wants ACC to pay for it. Her cerebral palsy was declared a "treatment injury", oncecommonly known as "medical misadventure", sufferedwhile her mother was pregnant with her. READ MORE: *Nelson woman raises $20,000 for overseas digestive treatment *Help needed for cerebral palsy sufferer's walking dream Harpur said hermum had a strep B infection while pregnant, and a correct protocol of antibiotics was not followed, resulting in her cerebral palsy diagnosis. "Because they didn'tfollow [protocol], I am the way I am." Harpur's CP has been covered by Accident Compensation Corporation (ACC), but it won't cover overseas surgery. … Continue reading →

What causes CP? The brain damage that causes CP can occur before the child is born, during birth or in the first few years of life. In most cases, CP is present at birth. Normally, the brain sends out messages telling the body exactly how to move and exactly when to move. Children who have CP have damage to the part of the brain that sends out these messages. This affects the way a child who has CP talks, walks and moves. Certain infections, such as rubella or chickenpox, in the pregnant mother can increase the risk of brain damage in the developing baby and cause CP. Sometimes, a babys brain does not develop properly while in the womb, which can also lead to CP. Doctors dont know for sure why this happens, but in some cases it can be associated with the mothers exposure to certain toxic substances. A difficult labor or delivery can cause CP. This can happen if there is a lack of oxygen in the babys brain during birth. Severe jaundice that is left untreated in newborns can also result in CP. Children who have meningitis or viral encephalitis can also lead to CP. Meningitis causes … Continue reading →

University Hospital Galway Image: Brian Farrell/RollingNews.ie University Hospital Galway Image: Brian Farrell/RollingNews.ie THE FAMILY OF Sadhbh Farrell has received an apology from University Hospital Galway (UHG), after the six-year-old was left severely brain damaged after a delay in receiving treatment for jaundice just after she was born in 2011. A court has ruled an interim settlement of 2.6 million will be made to the family, and UHG has expressed its deepest regret and apologised for its failings of care provided to Sadhbh. In a statement, the Farrell family said that the settlement reached will never remove our ongoing grief for the independent life lost to Sadhbh. Sadhbh Farrell was born on 23 January 2011. Her mother expressed concern within a day that she might be jaundiced and, although jaundice was noted by a district nurse, no further tests were carried out. The family said that babies born at less than 38 weeks Sadhbh was born at 36 weeks are at increased risk of jaundice and that it is mandatory for the serum blood bilirubin to be measured. It wasnt until 31 January that this test was carried out and her bilirubin level was found to be at 756. A level … Continue reading →