Category Archives: Cerebral Palsy Treatment

Aug. 1, 2014, 9:18 p.m. Wollongong nightclub bouncers have been given instruction in managing patrons with disabilities. Monika Ristova and her brother Lu Ristov at the Grand Hotel ahead of the Ables event. Picture: KIRK GILMOUR Wollongong nightclub bouncers have been given instruction in managing patrons with disabilities. Ahead of the Ables nightclub event, and after Dapto man Mick Robsons ejection from a Wollongong club when bouncers mistook his cerebral palsy for inebriation, disability workers on Thursday held a training session for the Wollongong Nightlife group on integrating patrons into venues. Illawarra disability worker Beau Thatcher said people with disabilities should be treated like any other clubgoer. We dont want bouncers walking on eggshells, but we want them to treat the disabled like anyone else, Mr Thatcher said. Mick Robson claimed he felt unwelcome at a club in June when bouncers suspected his cerebral palsy-related co-ordination difficulty was a symptom of intoxication. Its about having an open mind. If you see someone stumbling or slurring their speech, have a think about the situation before acting, Mr Thatcher said. We dont want security to be patronising, theyve been trained in these things, but not everyone is up to speed on dealing … Continue reading →

By Jenny Barwise Last updated at 14:38, Thursday, 31 July 2014 Cerebral palsy sufferer Isabelle Pears is just one step away from having life-changing surgery to help her walk. Isabelle Pears with mum Nicola The five-year-olds story touched the hearts of many when her parents appealed through the News & Star earlier this month asking for help to fund a specialist operation for their daughter. Little Isabelle has spastic diplegia, a tightness of her legs which makes it extremely difficult for her to walk. Her parents fear she could soon end up in a wheelchair. Workington couple Nicola and Lee Pears started a 25,000 campaign called Isabelles Dream as they thought they had no option other than to pay for the operation themselves as it was not routinely funded through the NHS. But in a welcome u-turn, the NHS has now announced that 120 youngsters will be able to take part in trials of the Selective Dorsal Rhizotomy (SDR) and Isabelles family yesterday received the overwhelming news that the youngster met the criteria in principle for NHS funding. However, they now have one last hurdle to clear before final confirmation can be given and that is for the Cumbria Clinical … Continue reading →

Contact Information Available for logged-in reporters only Newswise Of cerebral palsy, caregivers and patients know this is an understatement: its not easy. The permanently debilitating condition, which occurs in babies from the prenatal stage to toddlers, comes with more than its fair share of lifelong challenges from mobility problems to developmental setbacks. One of the biggest challenges posed to physicians when treating cerebral palsy patients is the problem of gait, or a patients movement patterns. In those patients, brain damage limits their arm and leg motor functions, which affects posture and free movement in the limbs. But the clinical problem for the physicians, at least is identifying gait issues, as it can be difficult to support a patients mobility functions without knowing their true extent. New research from the Motion and Sports Lab at Baylor University Medical Center at Dallas, however, may give children with cerebral palsy better treatment options in the future and it all starts with looking at how cerebral palsy patients move compared to their peers. The research, conducted by Baylors Scott Coleman along with investigators in Sweden, involved the study of three-dimensional gait analysis (GA) in both patients with and without cerebral palsy. By comparing the … Continue reading →

New York, NY (PRWEB) July 23, 2014 The birth injury patient advocates at CerebralPalsyHelp.org are alerting parents of new research information on the site concerning the causes of cerebral palsy. A recent Norwegian study found a strong relation between cerebral palsy and past family history of the condition*. The CP Help Center is a national advocacy center providing the latest on cerebral palsy treatment, clinical trials, resources and litigation news. Parents can learn more about their childs condition and how it may have been caused, get information on available assistance, and decide if they should seek legal advice. Cerebral palsy restricts muscle movement, coordination and posture. The leading cause of functional and developmental disability in children in the United States**, it occurs in approximately 3.3 out of every 1,000 births, and affects approximately 500,000 children**. While CP alters muscle function, it is actually a neurological disorder caused by brain damage to the parts that control muscle function***. This usually occurs before, during or after birth***. Cerebral palsy may be caused by factors occurring to the fetus during pregnancy, or by trauma or asphyxiation during labor***. There is no cure at this time. However, researchers are working toward better treatments. Recently, … Continue reading →

Mum's campaign to help Sophia walk 6:00am Wednesday 23rd July 2014 in News A MUM is trying to raise 75,000 to send her youngest daughter to the USA for a lifechanging operation. Kayleigh Kilbane, 22, is desperate for her two-year-old daughter Sophia, who has cerebral palsy, to have the surgery, which will allow her to walk without pain. The selective dorsal rhizotomy operation has not been widely available in the UK, as health bosses have to first agree to meet the 24,000 cost. But last week the NHS, which had stopped the operations, announced it would fund 120, to judge how effective they are before continuing with them. Miss Kilbane wants Sophia to have the op at St Louis childrens hospital, in Missouri, which has been doing them for 25 years. She said: I have spoken to a couple of people whose children had operations there and they have done over 2,700 operations and only three had trouble. They have not long been doing it in the UK. She wants Sophia to be able to playwith brother Aiden, five, and Louie, two, without having to be in a standing or sitting frame. Read more here: Mum's campaign to help Sophia … Continue reading →

Sam Rooke, pictured with son Jack FOR years desperate families across Bristol have been raising thousands of pounds to pay for their child to undergo a life-changing operation to help them walk. Some youngsters suffering from cerebral palsy struggle to walk without the surgery. Despite the operation's impressive track record in helping sufferers walk unaided, it has never been available on the NHS But now around 24 children each year, who live in the South West, will be able to undergo the surgery free of charge, thanks to a new pilot. Bristol Children's Hospital has been announced as one of five centres which will evaluate the effectiveness of the operation during a two to three-year programme. The Bristol Post has previously reported on dozens of families who have raised anywhere between 35,000 to 80,000 to pay for the treatment. This procedure involves a neurosurgeon cutting nerves in the spinal cord to reduce the tightness in youngsters' legs. Children, aged between three and 10, who suffer stiffness in their lower limbs, and meet the clinical criteria for treatment, will be able to apply. Sam Rooke, whose five-year-old child Jack underwent the operation in January, said this was 'a step in the … Continue reading →

TUESDAY, July 15, 2014 (HealthDay News) -- New research suggests that genes may play a role in cerebral palsy, the most common cause of physical disability in children. Previous research has identified several pregnancy-related risk factors, including preterm delivery, abnormal growth, exposure to infection and lack of oxygen at birth. A possible family link with cerebral palsy has also been found, but not confirmed. Cerebral palsy affects your ability to move, and alters your balance and posture. In this study, researchers analyzed data from more than 2 million births in Norway between 1967 and 2002. They identified more than 3,600 cases of cerebral palsy, or 1.8 cases for every 1,000 children born during that period. The rate was higher among twins (5.1 per 1,000 children) than among single children (1.7 per 1,000 children). If one twin had cerebral palsy, the other twin had a 15 times increased risk of the condition. If one child in a family had cerebral palsy, full siblings who were born later had a six to nine times increased risk, and half siblings had up to a three times increased risk. Children born to parents with cerebral palsy were 6.5 times more likely to have the … Continue reading →

Hundreds of children disabled by cerebral palsy will get life-changing operations after an NHS U-turn. Five hospitals will join a pilot scheme to carry out the selective dorsal rhizotomy procedure on 120 youngsters a year. Tory spending cuts have meant patients have been denied the operation after NHS bosses questioned if the 20,000 cost was good value for money. Among them was Ben Baddeley, 10, who eventually had surgery privately thanks to donations from generous Mirror readers. His mum Amy welcomed the change of heart but warned the Government was playing god with childrens health. She said: I feel pleased for the parents of the children who will receive treatment. But I also feel so sorry for the parents of those missing out as a result of the limits placed on these operations by the NHS. It means they will not get the SDR and their children will still have the same level of pain which Ive seen Ben go through. I have been up with him at night when he has been in agony. This decision means other children will suffer in the same way when they could be helped. VIEW GALLERY Excerpt from: NHS shamed into U-turn as … Continue reading →

Comments(0) THEY say one good turn deserves another. And now the generosity shown to one family has sparked a domino effect of fundraising in Bristol. Sam Rooke was overwhelmed by donations from strangers when he was raising 50,000 to send his son, Jack, who has cerebral palsy, for an operation to enable him to walk. So he has now decided to return the favour. This summer he will walk 130 miles from his house in Hengrove to Aberystwyth to raise money for Jaye Cook, who has cerebral palsy, which makes it impossible for him to walk unaided. The five-year-old's family is attempting to collect around 75,000 to pay for selective dorsal rhizotomy (SDR) surgery and treatment at Bristol Children's Hospital. The procedure involves a neurosurgeon cutting nerves in the spinal cord to reduce the tightness in youngsters' legs. Sam's altruistic actions have now inspired Jaye's mother, Melanie Cook, to raise money for another child once Jaye's operation is completed. Melanie, 40, from Kingswood, said Sam had provided not just financial help but also, more importantly, moral support. She added: "He came round and gave me the encouragement I needed to know that we could do this and it was possible. … Continue reading →

Kathie Bach, who was born with cerebral palsy, flashed a smile and a thumbs up after checking out the mammography machine in the Reger Family Center for Breast Health at Billings Clinic. Any woman with a disability would be easily accommodated here, said Bach, 65, of Glendive. Its wonderful. Everything is what I call mobility accessible. Bach, who relies on a wheelchair, serves as a disability adviser for the Montana Cancer Control Coalition. Bach joined facility evaluators from the University of New Mexico School of Medicines Center on Development and Disability on Tuesday to conduct an on-site visit. They also visited Yellowstone Breast Center at St. Vincent Healthcare. The visits were designed to increase staff awareness about mammography accessibility for women with disabilities and to offer technical assistance to improve facility accessibility. Breast cancer is the most common cancer in women. In 2010, the most recent year data is available, 206,966 women in the United States were diagnosed with breast cancer and 40,996 women died from breast cancer. Women with disabilities are at an increased risk of dying from breast cancer because they are significantly less likely to receive a clinical breast exam and mammogram screening. In the United States … Continue reading →