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Archives
Category Archives: Muscular Dystrophy Treatment
Texas A&M’s research using dogs is cruel and it isn’t helping to cure muscular dystrophy – The Dallas Morning News
Posted: Published on September 26th, 2019
Thephotos and videos of drooling and crippled golden retrievers in cages at Texas A&M University are heartbreaking. The dogs have been bred to be part of a studyof Duchenne muscular dystrophy,and then they are killed. Continue reading
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Final Tests Planned into Potential OCMD Gene Therapy, Could Support Trial in Patients – Muscular Dystrophy News
Posted: Published on September 26th, 2019
Three new animal-model tests of a potential gene therapyfor oculopharyngeal muscular dystrophy (OPMD), known as BB-301, are planned, Benitec Biopharmaannounced. Results are expected tosupport a request for a Phase 1 clinical trial in patients Continue reading
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Catabasis Pharmaceuticals and the Jain Foundation Announce a Preclinical Research Collaboration to Study Edasalonexent in Dysferlinopathy – Business…
Posted: Published on September 26th, 2019
CAMBRIDGE, Mass. & SEATTLE--(BUSINESS WIRE)--Catabasis Pharmaceuticals, Inc. (NASDAQ:CATB), a clinical-stage biopharmaceutical company, and the Jain Foundation, a non-profit foundation whose mission is to cure muscular dystrophies caused by dysferlin protein deficiency, announced a preclinical research collaboration to study edasalonexent (CAT-1004) in Dysferlinopathy. Continue reading
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FDA Grants Fast Track Designation to DMD Therapy Suvodirsen – Muscular Dystrophy News
Posted: Published on September 26th, 2019
The U.S. Food and Drug Administration (FDA) has granted fast track designation to suvodirsen as a treatment for people with Duchenne muscular dystrophy (DMD). Continue reading
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Sarepta Therapeutics to Announce 9-Month Functional Results from the SRP-9003 Gene Therapy Trial to Treat Limb-girdle Muscular Dystrophy Type 2E, or…
Posted: Published on September 26th, 2019
CAMBRIDGE, Mass., Sept. 25, 2019 (GLOBE NEWSWIRE) -- Sarepta Therapeutics, Inc. (NASDAQ:SRPT), the leader in precision genetic medicine for rare diseases, today announced that on Friday, Oct Continue reading
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Dyne Therapeutics Announces Support for ReSolve Natural History Study of Patients with Facioscapulohumeral Muscular Dystrophy (FSHD) – Business Wire
Posted: Published on September 26th, 2019
WALTHAM, Mass.--(BUSINESS WIRE)--Dyne Therapeutics, a biotechnology company pioneering targeted therapies for patients with serious muscle diseases, today announced its support for the ReSolve study, an ongoing natural history study designed to inform the development of therapies for facioscapulohumeral muscular dystrophy (FSHD). ReSolve (Clinical Trial Readiness to Solve Barriers to Drug Development in FSHD) is an observational study run by the FSHD Clinical Trial Research Network (CTRN), a network of medical centers across the U.S. Continue reading
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The Hereditary Neuropathy Foundation Shares Voice of the Patient (VoP) Report – BioSpace
Posted: Published on September 26th, 2019
VoP Report was recently published on the FDA website, highlights the results of the Externally-led Patient-Focused Drug Development (PFDD) Meeting NEW YORK, Sept. Continue reading
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SOMETHING TO CONSIDER: Wife is encouraged through faith – Herald-Banner
Posted: Published on September 26th, 2019
Selenon Related Myopathy. Continue reading
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Highlands Ranch Mom of Triplets and Cancer Survivor Pays it Forward on Saturday, September 28 – The Know
Posted: Published on September 26th, 2019
Taami Bash and her three daughters in pink tutus Race for the CURE Diagnosed with early stage breast cancer at age 42, Taami Bash of Highlands Ranch was in the midst of raising three 8-year-old daughters when she received the news. She turned to her fitness community to get her through the next year of treatment. Continue reading
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How the Yarmouth, Fryeburg boy’s soccer teams are proving it’s about more than the game – NewsCenterMaine.com WCSH-WLBZ
Posted: Published on September 26th, 2019
YARMOUTH, Maine Tuesday nights soccer match between Fryeburg Academy and Yarmouth High School's Varsity boys proved to be more about celebrating each others differences than winning. For Jared Conant, it was about getting out on the field with his team, something that isn't always easy when you're confined to a wheelchair. Continue reading
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