Category Archives: Retinitis Pigmentosa

As John Margist takes his seat at Heinz Field, he enjoys the sensations associated with a college football Saturday. The smell of the grass, the taste of tailgate food, the sound of the marching band playing Pitt's fight song. Margist settles in and pulls out his portable radio to hear the Panthers' pregame show. He listens as the announcers break down that day's opponent. Eventually, the moment comes that Margist has been waiting for. His younger half-brother, Pitt linebacker Matt Galambos, sprints out of the tunnel in the south corner of the stadium. Margist, though, has never actually seen Galambos take that field. He has retinitis pigmentosa, a degenerative eye disease that has progressively damaged his retinas and left him legally blind. When Galambos was in high school, Margist relied on friends and family members sitting near him to keep him updated on what was happening on the field. Now, with the help of his radio, he can keep up just as well as everyone else -- sometimes even better. "I have the earbuds in my ear the whole game so I'm literally telling people [what just happened] sometimes," Margist said. "They're going, 'Is that Matt?' and I'm like, 'Yeah,' … Continue reading →

"Bionic eye" manufacturer Second Sight Medical Products Inc. wants to offer its stock to the public. The Sylmar company makes a prosthetic retina that improves vision for patients with a rare disease called retinitis pigmentosa. It filed for an initial public offering with the Securities and Exchange Commission on Monday. Second Sight's Argus II system was approved by the Food and Drug Administration last year. The system, which includes a video camera and transmitter mounted on eyeglasses, translates light and movement into electrical signals that are sent to electrodes implanted in a patient's retina. "We are very pleased to have filed our [IPO] application with the SEC and are looking forward to our next phase as a public company as we pursue our mission of restoring sight to the blind," Second Sight's chief executive, Dr. Robert Greenberg, said in an email. He said it was uncertain when an IPO might take place. Clinical trials have demonstrated that Second Sight's prosthetic device, which took more than two decades to develop, helps people whose retinal cells were destroyed by disease to restore the ability to perform many daily activities. It does not fully restore vision, but allows patients to detect light, dark, … Continue reading →

Retinopathia Pigmentosa Behandlung / Retinitis Pigmentosa Treatment Rosmarie from Switzerland , 70 y.o with Retinitis Pigmentosa has recovered one of her eyes eyesight where she almost had lost all of the vision. The eyesight... By: Osman Fratl … Continue reading →

NEWARK, Ark. (AP) - While many teen girls are concerned with the latest fashions, cell phones and their friends, 15-year-old Abby Summers has bigger issues - like how to convince major Hollywood producers to turn her book into a television series. Summers has recently published her first book, The Unknowns, and while that might be satisfaction enough for some people, Summers is already planning the second book in what will be a trilogy and will be pitching her book before producers in Los Angeles in September, The Batesville Daily Guard reported (http://bit.ly/1oyMO26 ). Summers fictional book, The Unknowns, centers around six teenagers who awake to find themselves in a forest and make their way to a place called Ataxia. The main character, Alex, is adopted and raised in an abusive home with alcoholic parents and has learned to survive on her own - a trait she would need to survive. Summers book shows shes got quite an imagination as it is a far cry from her real life with parents Mark and Crystal and brother, Andrew, 17, who has Bardet-Biedl syndrome with retinitis pigmentosa, a condition that will eventually take his sight. The trip to Los Angeles will double as … Continue reading →

........................................................................................................................................................................................ Another significant fundraising event in Rio Rancho is fast-approaching, but theres still 10 days to register to participate or donate to support a very worthy cause. The Juliette RP Vision Foundation is sponsoring the sixth annual Vision Walk/Run and Car Show on Saturday, Aug. 16, with a pet-friendly 5K walk/run, kids fun run (8 and under), bake sale and other fun activities for the family. All proceeds go toward the foundation to provide scholarships for visually impaired students and to young research scientists who are conducting retinitis pigmentosa and related retina research. Vision Walk/Run will start in the parking lot at Presbyterian Rust Medical Center, 2400 Unser Blvd., in Rio Rancho. Registration is $25 a person, $20 a person for teams of four or more and $10 a person for those 12 and under. Participants will get a T-shirt on the day of the event. The run will begin at 8 a.m., with the walk set to start at 8:05. There will be awards for the three fastest runners in five age categories: 9-19, 20-29, 30-39, 40-49, and 50 and above. People can register online at JulietteVision.org, or sign up the day of the event, beginning at 7 a.m. … Continue reading →

Part 2- Retinitis Pigmentosa Treatment ( in Arabic) - Medical results -8.y.old Retinitis Pigmentosa Treatment with Electro-Acupuncture Therapy The 8th year old RP patients (from Qatar) father explains the results of his boy and compares... By: Osman Fratl … Continue reading →

Part 1- Retinitis Pigmentosa Treatment - (in Arabic) - 8.y.o Retinitis Pigmentosa Treatment with Electro-Acupuncture in Firatli Clinic Web-address for RP treatment : http://www.retinitispigmentosacure.com Web-address for Star... By: Osman Fratl … Continue reading →

Patient With Advanced Keratconus and Retinitis Pigmentosa Wearing Scleral Lenses This patient visited our practice from Dubai with an advanced case of Retinitis Pigmentosa and Keratoconus. He is seeing clearer than he did before visiting ... By: dredbosh … Continue reading →

11:38pm, Fri 1 Aug 2014 PM hopes to make Britain 'world leader in genetics' Last updated Fri 1 Aug 2014 The government-backed genome project could help find a cure for a deadly eye disease which is the leading cause of blindness in children. Professor Graeme Black, strategic director at the Manchester Centre for Genomic Medicine, said it was a "very, very exciting development" in the search for a possible treatment for the condition known as retinitis pigmentosa or RP. At the moment around 200 genes relating to the illness have been identified which if mutated can cause sight loss, but there are thought to be more than 500. RP Fighting Blindness chief executive David Head said: "For people faced with blindness as a result of inherited retinal dystrophies, this is really important." A baby deer loved having his tummy rubbed by a construction worker that he refused to be put down in a comical video. Louis van Gaal admits he may not sign any more new players because of Manchester United's impressive pre-season form. Pictures taken during the First World War have been published for the first time, offering a snapshot of a soldier's life in trenches. Prime Minister David … Continue reading →

Elite Para-Triathlete Jonathan Goerlach at Save Sight Institute Parents/Carers Info Day Jonathan Goerlach is an elite para-triathlete with Retinitis Pigmentosa (RP). He generously shares his inspiring story to parents of children with severe vis... By: SaveSightInstitute … Continue reading →