By Caroline Cheetham
PUBLISHED: 17:17 EST, 11 June 2012 | UPDATED: 17:32 EST, 11 June 2012
As she watched her son Jack buzzing about at playgroup, Alex Johnson noticed the 18-month-old didnt seem as advanced physically as the other children.
He couldnt jump as high, or run as fast, and he struggled to hold himself up when he was on the slide, says Alex.
There wasnt anything more specific than that but to my eye it seemed noticeable.
On Duchenne muscular dystrophy: 'I kept looking at the information and realised Jack wasn't going to get better. In fact, he was going to get worse,' said Alex Johnson, pictured with son Jack and husband Andy
Worried, Alex took Jack to the local GP surgery on three occasions.
However, the doctors were not concerned. And Alex was simply advised children develop at different stages and all catch up eventually, so she felt reassured.
The GPs words had particular resonance for 27-year-old Alex and her husband Andy.
Alex had nearly miscarried four times during her pregnancy, so when Jack was born in January 2008 safe and well, theyd said a silent prayer of thanks for their miracle.
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Duchenne muscular dystrophy: In just a few years this lively little boy will be left crippled
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