Washington, D.C. (PRWEB) October 04, 2012
The Epilepsy Foundation and the Epilepsy Therapy Project today announced an intention to merge. The new organization will have unparalleled reach and leadership through a nationwide supportive care network, broad-based public awareness, education and focus on accelerating the clinical development of innovative therapies for people with epilepsy. The Epilepsy Therapy Project will continue to work to accelerate new therapies in a timeframe that matters as the Epilepsy Therapy Project of the new Epilepsy Foundation.
The reality we face today is that one-third of more than two million Americans living with epilepsy have no seizure control. A staggering one in 26 Americans will develop a form of epilepsy in their lifetime, and still epilepsy remains one of the most under-supported medical conditions in the nation. The coming together of the Epilepsy Foundation and the Epilepsy Therapy Project will create an organization with critical mass, energy and credibility, said Warren Lammert, co-founder of the Epilepsy Therapy Project and the father of a child with epilepsy. Rather than building two competing brands and infrastructures, we will invest together to advance new therapies in a timeframe that matters and improve the lives of people with epilepsy.
The Epilepsy Therapy Project and Epilepsy Foundation together have provided funding to 42 of the 85 known drugs and devices in active development through an existing and successful partnership, resulting in the introduction of three new epilepsy products in the past year: the Visualase MR guided laser for minimally invasive epilepsy surgery, the SmartWatch seizure detection and caregiver alert device, and the NeuroSigma Monarch external Trigeminal Nerve Stimulation system for the adjunctive treatment of epilepsy.
The Epilepsy Therapy Project has done an impressive job of uniting the clinical and research communities, advancing the epilepsy pipeline, and creating epilepsy.com - the foremost website for professionals and consumers, said Brien Smith, M.D., Chairman, Epilepsy Foundation. As one foundation, we have the opportunity to build an exceptional and highly focused organization - with the capability and expertise to make enormous strides in education, funding and the acceleration of new therapies.
As a physician who treats many people with epilepsy, I am reminded daily of the desperate need for new and better therapies and scientific breakthroughs for those with no treatment options. When we created the Epilepsy Therapy Project, we faced the same need 10 years ago as today to raise the level of funding in the nation and accelerate the development and commercialization of new therapeutics and diagnostics, said Orrin Devinsky, M.D., co-founder of the Epilepsy Therapy Project, Professor of Neurology, Neurosurgery and Psychiatry and Director of the NYU Comprehensive Epilepsy Center, New York University. We need strength, synergy and unity to drive our mission moving forward. Once merged, the Epilepsy Therapy Project and the Epilepsy Foundation will focus scientific research and clinical medicine on the most important goal new therapies, better control and a national call to action on behalf of everyone living with epilepsy.
The merging of the Epilepsy Foundation with the Epilepsy Therapy Project will create a unified organization driving education, awareness, support and new therapies for people and families living with epilepsy, bringing together the mission and assets of both organizations:
When your child is first diagnosed with epilepsy, the fear, isolation and questions can be paralyzing, said Philip M. Gattone, President and CEO of the Epilepsy Foundation and the father of a child with epilepsy. The new Epilepsy Foundation will be even stronger and more nimble in providing national leadership and support to the epilepsy community. By bringing together the resources of the Epilepsy Foundation with the Epilepsy Therapy Project and epilepsy.com, we will be able to reach all people with epilepsy - from the newly diagnosed to soldiers returning from war - and help them understand the condition, seek out the best treatment options and educate on scientific inroads and clinical trials. No one needs to feel alone in the fight against epilepsy.
The Boards of both organizations have agreed to a Memorandum of Understanding which, when executed, will result in the creation of a newly merged organization known as the Epilepsy Foundation. The plan will be for the organizations to be fully united by January 1, 2013.
About Epilepsy When a person has two or more unprovoked seizures, they have epilepsy. Epilepsy affects more than two million people in the United States and 65 million people worldwide. This year, another 200,000 people in the U.S. will be diagnosed with epilepsy. Despite all available treatments, 30 to 40 percent of people with epilepsy continue to experience seizures.
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Epilepsy Foundation and Epilepsy Therapy Project Announce Merger to Create New National Organization