By Lucy Elkins
PUBLISHED: 17:56 EST, 26 March 2012 UPDATED: 23:39 EST, 26 March 2012
Like all children, five-year-old Evie Read likes to talk about what shes going to do when she grows up, specifically what she will do when I am a mummy and when I can drive a car.
Its the sort of thing that would provoke a smile in most parents, but for Emily and Toby Read it is simply heartbreaking for they know that without a medical miracle, their beautiful daughter will not get to experience any of these things.
Watching Evie bouncing off the sofa during a boisterous game of doctors and nurses with her three-year-old brother Wilf, its hard to envisage her as anything other than a healthy, active little girl.
Toby and Emily Read with (from left) Evie, Wilf and Albie. Evie has ataxia-telangiectasia, a genetic disorder. How long she has before she loses her physical abilities, no one knows
Indeed, until very recently there were no obvious warning signs that anything was wrong.
Evie achieved the usual development targets and was advanced in her talking. She said her first word duck at ten months.
She didnt even have much in the way of colds.
See the article here:
Evie thinks she just has 'wobbly legs'. The truth will break your heart