Amyotrophic lateral sclerosis has affected his face, speech and right arm, but here he was with his wife, Kelsie, and their children -- Cohen, 10, and Willa, 7 -- to present the Norris Trophy and raise awareness of the progressive neuromuscular disease.
Snow thumped his chest with his left arm in appreciation.
"ALS is an isolating disease," Kelsie told the audience. "Thanks for always reminding us that we are not alone."
"Now we hand out the trophy for the best defenseman," Chris said. "I know that these guys are so vitally important. When constructing the roster, they are the foundation of the team."
"Here are the nominees for the James Norris Memorial Trophy," Kelsie said.
Video: Chris Snow and his family speak at NHL Awards
After a video montage of Roman Josi of the Nashville Predators, Victor Hedman of the Tampa Bay Lightning and Cale Makar of the Colorado Avalanche, they opened a box containing the winner's name.
"And the winner of the Norris Trophy is" Chris said.
"Cale Makar!" Cohen said.
Each presenter was special Tuesday.
There was Thomas Hodges, who overcame blindness in one eye to play in a game for the Anaheim Ducks this season as an emergency backup goalie.
There was Jake Thibeault, a Milton Academy (Massachusetts) player who was paralyzed by an injury in September 2021.
There was Nadia Popovici, a Seattle Kraken fan who spotted a cancerous mole on the neck of Vancouver Canucks assistant equipment manager Red Hamilton from behind the glass.
And then there were the Snows, who represented more than themselves.
"It's a huge honor," Chris said. "This night is about the players and their achievements, and to not only allow us to participate but to share our story is such an awesome way to honor the people with the disease, not just us. Hey, this disease deserves more attention shined on it, and we're really grateful to the League for doing that."
Chris and Kelsie have been open and honest about their experience with ALS via social media, and Kelsie has shared their story and others' stories via her blog and podcast "Sorry, I'm Sad." They have raised awareness and money via efforts like #weaksidestrong, which challenges people to do something they love but with their opposite hand or foot.
"This is a disease that happens in the darkness, right?" Kelsie said. "It's such an overwhelming disease just to live with that most of the time people can't advocate and can't be a face for it while they're going through it. You go home, and you just try to get through every day, and you're just gutting it out every single day.
"And so, for us to have the opportunity for him to be as healthy as he's been for as long as he's been, really allows us to put a public face to it. And that's the goal, right? It's not, like, 'Oh, we're inspiring.' That's not what we're here for.
"We're here to just say, 'Hey, look at us. There's a ton of other people like us, and we want you to see this disease and understand that it's happening to young families. It's not just happening to grandparents. It's happening to young dads, young moms.'"
Chris received his diagnosis in June 2019, not long after losing his father, two uncles and a cousin to ALS. At 37, he was told to do what brings him joy. But what brings him joy is living, and so he pursued an experimental therapy to slow the disease. The 40-year-old has kept working for the Flames, and his family has savored every moment together, big and small.
Take Game 7 of the Western Conference First Round between the Flames and Dallas Stars at Scotiabank Saddledome. Calgary won 3-2 in overtime.
"That was a pretty emotional experience, just because you don't know, right?" Kelsie said. "You never know going in, like, 'Well, is this going to be my last chance?' And so those things are always big. They're so much more on the front of our mind than for other people, the notion that we need to hold onto that moment and remember it."
The Snows landed in Tampa on Monday and went straight to see the Tampa Bay Rays at Tropicana Field. Rays GM Peter Bendix asked for Cohen's favorite player, then told the Snows to go to the dugout after the game for a surprise. Outfielder Brett Phillips met them with gifts -- a signed Phillips jersey for Cohen, plus hats and signed baseballs for each kid.
The kids wore them to rehearsal for the NHL Awards on Tuesday morning, then dressed up for the show on Tuesday night.
Cohen said he most wanted to meet Toronto Maple Leafs center Auston Matthews, who did a #weaksidestrong challenge himself on Twitter, hitting tennis balls lefthanded. Matthews appeared emotional during the standing ovation for the Snows on a night he won the Hart Trophy, voted most valuable player by the Professional Hockey Writers Association, and the Ted Lindsay Award, voted most outstanding player by the NHL Players' Association.
The Snows will attend Game 4 of the Stanley Cup Final between the Avalanche and Lightning at Amalie Arena on Wednesday (8 p.m. ET; ABC, ESPN+, CBC, SN, TVAS) before returning to Calgary, where Chris will continue his offseason work for the Flames.
"Walking out of ballpark yesterday, Cohen said, 'I'll forever remember this,'" Kelsie said. "I said, 'I wonder how many more times he's going to say that this week.'"
Here is the original post:
Flames executive Snow thankful to share story of ALS battle at NHL Awards - NHL.com
- Jake Diekman throws BP session for Rangers | MLB.com - MLB.com [Last Updated On: August 6th, 2017] [Originally Added On: August 6th, 2017]
- Cerebral palsy: Symptoms, diagnosis, treatment [Last Updated On: December 5th, 2017] [Originally Added On: December 5th, 2017]
- Hypothalamus - the body's thermostat | ASU - Ask A Biologist [Last Updated On: December 6th, 2017] [Originally Added On: December 6th, 2017]
- When Stroke Affects the Thalamus - Stroke Connection ... [Last Updated On: December 28th, 2017] [Originally Added On: December 28th, 2017]
- The Endocrine System: Hypothalamus and Pituitary [Last Updated On: December 28th, 2017] [Originally Added On: December 28th, 2017]
- Hypothalamus - Anatomy, Blood supply and Function | Kenhub [Last Updated On: December 28th, 2017] [Originally Added On: December 28th, 2017]
- Ulcerative Colitis - Cedars-Sinai [Last Updated On: January 6th, 2018] [Originally Added On: January 6th, 2018]
- Ulcerative colitis - Treatment - NHS.UK [Last Updated On: January 7th, 2018] [Originally Added On: January 7th, 2018]
- Business Directory | Uptown Waterloo Business Improvement Area [Last Updated On: January 8th, 2018] [Originally Added On: January 8th, 2018]
- Will States Continue To Fund Stem Cell Research? : Shots ... [Last Updated On: January 28th, 2018] [Originally Added On: January 28th, 2018]
- Spinal Cord Injuries - emedicine.medscape.com [Last Updated On: February 15th, 2018] [Originally Added On: February 15th, 2018]
- Spinal Cord Injuries - spine.org [Last Updated On: February 15th, 2018] [Originally Added On: February 15th, 2018]
- Journal of Clinical & Experimental Cardiology - Open Access Journals [Last Updated On: April 10th, 2018] [Originally Added On: April 10th, 2018]
- Cardiology Treatment - Fortis Healthcare [Last Updated On: April 10th, 2018] [Originally Added On: April 10th, 2018]
- Biology Junction [Last Updated On: April 12th, 2018] [Originally Added On: April 12th, 2018]
- Managing Right Ventricular Failure in PAH: An Algorithmic ... [Last Updated On: April 14th, 2018] [Originally Added On: April 14th, 2018]
- Ticagrelor vs Clopidogrel After Fibrinolytic Therapy in ... [Last Updated On: April 22nd, 2018] [Originally Added On: April 22nd, 2018]
- Cardiovascular Pharmacotherapeutics: William H. Frishman ... [Last Updated On: May 13th, 2018] [Originally Added On: May 13th, 2018]
- 13 Super Foods Good for Eczema - Top Eczema Treatments [Last Updated On: May 15th, 2018] [Originally Added On: May 15th, 2018]
- Diagnosis & Treatment of Parkinson's - ParkinsonsDisease.net [Last Updated On: May 30th, 2018] [Originally Added On: May 30th, 2018]
- Arizona Heart Rhythm Center [Last Updated On: June 10th, 2018] [Originally Added On: June 10th, 2018]
- Ayurvedic Medicines for Ulcerative Colitis | Natural ... [Last Updated On: June 21st, 2018] [Originally Added On: June 21st, 2018]
- Weinstein Cardiovascular Development and Regeneration Meeting [Last Updated On: June 30th, 2018] [Originally Added On: June 30th, 2018]
- Ulcerative Colitis Information Centre [Last Updated On: July 31st, 2018] [Originally Added On: July 31st, 2018]
- Sudden Death in Dogs - Pet Health Network | Pet Health ... [Last Updated On: August 7th, 2018] [Originally Added On: August 7th, 2018]
- Coronary Heart Disease - Ischaemic heart disease - British ... [Last Updated On: August 21st, 2018] [Originally Added On: August 21st, 2018]
- Cardiac Rehabilitation: Overview, History and Definition ... [Last Updated On: August 25th, 2018] [Originally Added On: August 25th, 2018]
- Difference between Cardiac Arrest and Respiratory Arrest ... [Last Updated On: August 25th, 2018] [Originally Added On: August 25th, 2018]
- ECM for Pericardial Closure - Aziyo [Last Updated On: August 25th, 2018] [Originally Added On: August 25th, 2018]
- Adult Mental Health | Georgia Department of Behavioral Health ... [Last Updated On: September 6th, 2018] [Originally Added On: September 6th, 2018]
- Mental Health | ECLKC [Last Updated On: September 6th, 2018] [Originally Added On: September 6th, 2018]
- Mental Health - The Church of Jesus Christ of Latter-day Saints [Last Updated On: September 6th, 2018] [Originally Added On: September 6th, 2018]
- Center for Vascular Biology - Home | UConn Health [Last Updated On: September 22nd, 2018] [Originally Added On: September 22nd, 2018]
- # Diabetes Stem Cell Research Diabetes Care Measures [Last Updated On: September 30th, 2018] [Originally Added On: September 30th, 2018]
- Cardiac Rhythm Disturbances | The Patient Guide to Heart ... [Last Updated On: November 2nd, 2018] [Originally Added On: November 2nd, 2018]
- Arrhythmia | Cleveland Clinic [Last Updated On: November 2nd, 2018] [Originally Added On: November 2nd, 2018]
- Hyperbaric Oxygen Therapy for Wound Healing | Johns ... [Last Updated On: November 13th, 2018] [Originally Added On: November 13th, 2018]
- NIMH Home [Last Updated On: November 24th, 2018] [Originally Added On: November 24th, 2018]
- What is an interventional cardiologist? | Heart Surgeries ... [Last Updated On: November 26th, 2018] [Originally Added On: November 26th, 2018]
- Molecular Cardiology Research Institute Boston | Tufts ... [Last Updated On: November 29th, 2018] [Originally Added On: November 29th, 2018]
- Lower vascular plant | botany | Britannica.com [Last Updated On: December 7th, 2018] [Originally Added On: December 7th, 2018]
- Welcome to the ABG Tutorial Welcome to Hansen [Last Updated On: December 12th, 2018] [Originally Added On: December 12th, 2018]
- Cardiac catheterization - Wikipedia [Last Updated On: December 12th, 2018] [Originally Added On: December 12th, 2018]
- Stem Cell Research & Therapy | Home page [Last Updated On: December 22nd, 2018] [Originally Added On: December 22nd, 2018]
- Journal of Stem Cell Research and Therapy- Open Access ... [Last Updated On: December 22nd, 2018] [Originally Added On: December 22nd, 2018]
- Stem-cell therapy - Wikipedia [Last Updated On: December 22nd, 2018] [Originally Added On: December 22nd, 2018]
- Cardiology and Interventional Cardiology [Last Updated On: December 23rd, 2018] [Originally Added On: December 23rd, 2018]
- Rhode Island Interventional Cardiology | Cardiovascular ... [Last Updated On: December 23rd, 2018] [Originally Added On: December 23rd, 2018]
- Interventional Cardiology Certification Policies | ABIM.org [Last Updated On: December 23rd, 2018] [Originally Added On: December 23rd, 2018]
- Interventional Cardiology - Boston Scientific [Last Updated On: December 23rd, 2018] [Originally Added On: December 23rd, 2018]
- 9 Benefits of Human Growth Hormone (Along with Side ... [Last Updated On: December 27th, 2018] [Originally Added On: December 27th, 2018]
- Growth hormone deficiency - Wikipedia [Last Updated On: December 27th, 2018] [Originally Added On: December 27th, 2018]
- Dr. Lorrie Kirshenbaum, Cardiac Gene Biology | St ... [Last Updated On: January 28th, 2019] [Originally Added On: January 28th, 2019]
- Cardiomyopathy - CardioSmart [Last Updated On: February 8th, 2019] [Originally Added On: February 8th, 2019]
- Centenary Institute | Medical Research, Life Saving Research [Last Updated On: February 24th, 2019] [Originally Added On: February 24th, 2019]
- Cardiovascular Medicine | Department of Medicine [Last Updated On: March 29th, 2019] [Originally Added On: March 29th, 2019]
- Rapid Test Market 2019 with Recent Trends, Revenue, Demand and Top Manufactures- Bureau Veritas, SGS SA, Intertek Group plc, Eurofins Scientific -... [Last Updated On: October 11th, 2019] [Originally Added On: October 11th, 2019]
- Medical Imaging Equipment Market Research Report 2019: Global Industry Analysis, Business Development, Size, Share, Trends, Future Growth, Forecast To... [Last Updated On: October 11th, 2019] [Originally Added On: October 11th, 2019]
- Analysis on the Global DNA Read, Write & Edit Market, 2017-2019 and Forecast to 2024 - Yahoo Finance [Last Updated On: October 11th, 2019] [Originally Added On: October 11th, 2019]
- Cardiac Surgery Instruments Market is Expected to Tread a Steady Growth Trajectory by Clocking a CAGR of 5.9% from 2017 to 2022 - Health News Office [Last Updated On: October 24th, 2019] [Originally Added On: October 24th, 2019]
- PEDIATRIC MEDICAL DEVICES MARKET IS PROJECTED TO EXPAND AT A CAGR OF 8.0% FROM 2018 TO 2026 - Health News Office [Last Updated On: November 1st, 2019] [Originally Added On: November 1st, 2019]
- myTAIHEART Test Provides Evidence for Injury from Biopsy of Heart Transplant Recipients Cardiology2.0 - Cardiology2.0 [Last Updated On: November 1st, 2019] [Originally Added On: November 1st, 2019]
- Mental health and your heart - British Heart Foundation [Last Updated On: November 19th, 2019] [Originally Added On: November 19th, 2019]
- BUZZ-U.S. STOCKS ON THE MOVE-Cango, Gulfport Energy, Abiomed, Standard Diversified, Wanda Sports, Eidos - Nasdaq [Last Updated On: November 19th, 2019] [Originally Added On: November 19th, 2019]
- Cost Analysis of COPD Exacerbations and Cardiovascular Events in SUMMIT - AJMC.com Managed Markets Network [Last Updated On: November 19th, 2019] [Originally Added On: November 19th, 2019]
- Hundreds walk to defeat ALS in Ancient City - St. Augustine Record [Last Updated On: November 22nd, 2019] [Originally Added On: November 22nd, 2019]
- Living with Lung Cancer: The Silver Linings - Curetoday.com [Last Updated On: November 22nd, 2019] [Originally Added On: November 22nd, 2019]
- Building the human spinal cord atlas - SynBioBeta [Last Updated On: November 22nd, 2019] [Originally Added On: November 22nd, 2019]
- The Week That Wasn't: Keto and the Flu, Human Cyborg, Duvet Disease - Medscape [Last Updated On: November 22nd, 2019] [Originally Added On: November 22nd, 2019]
- ALS advance offers hope for those diagnosed with deadly disease - WRAL.com [Last Updated On: November 22nd, 2019] [Originally Added On: November 22nd, 2019]
- ALS Stem Cell Therapy Developer Seeks Amendment to its AstroRx Trial - ALS News Today [Last Updated On: November 22nd, 2019] [Originally Added On: November 22nd, 2019]
- Former Boston Globe writer, current NHL executive Snow diagnosed with ALS | College Hockey - USCHO [Last Updated On: December 23rd, 2019] [Originally Added On: December 23rd, 2019]
- AB Science announces the publication of new results in the peer-reviewed journal Glia that further support masitinib's potential mode of action in ALS... [Last Updated On: December 23rd, 2019] [Originally Added On: December 23rd, 2019]
- Christmas in the City thrills homeless families, takes on poignancy with founders ALS diagnosis - The Boston Globe [Last Updated On: December 23rd, 2019] [Originally Added On: December 23rd, 2019]
- Amylyx Pharmaceuticals Announces AMX0035 Demonstrated Statistically Significant Treatment Benefit for People with ALS in the CENTAUR Trial - Business... [Last Updated On: December 23rd, 2019] [Originally Added On: December 23rd, 2019]
- RADICAVA (edaravone) [Last Updated On: December 23rd, 2019] [Originally Added On: December 23rd, 2019]
- List of Amyotrophic Lateral Sclerosis Medications (5 Compared ... [Last Updated On: December 23rd, 2019] [Originally Added On: December 23rd, 2019]
- Neuropore Completes Phase 1 Clinical Trial in Healthy Volunteers with NPT520-34, a Therapeutic Candidate Aimed at Treating Parkinson's Disease and... [Last Updated On: January 14th, 2020] [Originally Added On: January 14th, 2020]
- Comprehensive Analysis on Prostacyclin Market based on types and application - Technology Magazine [Last Updated On: January 18th, 2020] [Originally Added On: January 18th, 2020]
- N.J. karate legend who inspired thousands loses battle with ALS - NJ.com [Last Updated On: January 18th, 2020] [Originally Added On: January 18th, 2020]