Give Westgate boy Connor your support as he battles Duchenne muscular dystrophy

Posted: Published on January 21st, 2015

This post was added by Dr Simmons

Caring for Connor is Thanet Extras Charity of the Year for 2015.

Connor Olsen is five years old and suffers from Duchenne muscular dystrophy (DMD).

Wayne and Georgina Olsen with Kye, two, and Connor, five

The condition causes muscle degeneration, which means he could be in a wheelchair by the age of 10, and has a life expectancy of just 20. There is no known cure for the condition and research into treatments is not funded by the NHS.

His family want to make sure there is funding to ensure Connor, who goes to St Crispins Infant School, has everything he needs to fight the progressive disease.

Connors mum Georgina said: Its fantastic weve been chosen. The support in Thanet and across Kent has always been overwhelming.

Connor is ok at the moment, but he is slowing down a little bit now, he struggles up the stairs more and has less energy. He is in Year 1 at school and is really enjoying it.

But time is ticking, Connors muscles are wasting, and time goes by so quickly so were hoping people can donate a bit of their time or money to help.

A lot of people seem to think that its not too bad and he seems fine, but to us its devastating that hell progressively lose the use of all his muscles, will not be able to breathe unaided or turn himself. We wonder how long weve got left with him.

His heart is a muscle, so that will be affected at some point.

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Give Westgate boy Connor your support as he battles Duchenne muscular dystrophy

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