Local & Crewe News: Family of five-year-old boy continue fundraising mission for Muscular Dystrophy Campaign

Mar 27 2013 by Ellie Cullen, Crewe Chronicle

THE devoted family of a five-year-old boy are continuing their fundraising mission to help find a cure for his devastating illness.

Thomas Robinson, from Crewe, suffers from Duchenne muscular dystrophy, a genetic condition which causes muscles throughout the body to weaken and waste over time.

Very few children born with the condition will live to see their 30th birthday.

Thomass parents Karen and Neil, and both sets of grandparents, Ken and Margaret Robinson and Kevin and Muriel Henson, have joined forces to raise as much money as possible for the Muscular Dystrophy Campaign.

They have organised a concert hosted by the Crewe Male Voice Choir on Saturday, April 6, to help fund research into potential treatments and cures.

Thomas was diagnosed with the muscle-wasting condition at just six months old, leaving his entire family heartbroken.

Dad Neil said: Weve been told its likely that Thomas will be permanently using a wheelchair in the next five or six years. The way that Duchenne muscular dystrophy will affect every aspect of Thomass life is always in the back of our minds.

The Duchenne Breakthrough Research Fund gives us real hope for his future with the possibility of finding a cure or even an effective treatment in the not too distant future, not just for Thomas, but for all children with the various types of Duchenne muscular dystrophy.

The condition is extremely rare and affects mainly boys, with the exception of a handful of girls worldwide.

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Local & Crewe News: Family of five-year-old boy continue fundraising mission for Muscular Dystrophy Campaign