Posted on: 10:47 pm, April 7, 2014, by Web Staff, updated on: 11:02pm, April 7, 2014
Ana Watson said she has tried everything for her young son Preston, who has epilepsy.
The particular form he has is called Dravet Syndrome, caused by a genetic anomaly that was largely unknown when Preston first exhibited its symptoms.
There is little treatment for it and what there is has proven to be ineffective. It started shortly after Preston was born.
We noticed his legs would tremor and they just thought it was muscles that hadnt developed and then, at three months when he had his first grand mal seizure, then we knew, Watson said.
He has literally hundreds of seizures a day. Some are small and others arent.
You think, Is this the seizure when Im going to have to call 911?, Watson said. And, then youre last thoughts are, Is this the seizure hes not going to come out of?
Dr. Bob Greenwood, of UNC Childrens Hospital, is Prestons neurologist.
Dr. Greenwood, too, feels the frustration of dealing with a condition that appears to be stronger than any medicine.
He has, literally, been treated with every anti-convulsive that we have, Greenwood said. And we truly have not found anything that would control his seizures.
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