Government commended by community for Ontario Brain Institute epilepsy research grant
TORONTO, March 6, 2012 /CNW/ - Today at Queen's Park, 40 members of Ontario's epilepsy community, led by Epilepsy Ontario, gathered to meet with MPPs and policy advisors to increase awareness of epilepsy within government and advocate for the implementation of an Ontario Epilepsy Strategy. The key topics of discussion included the impact of epilepsy on Ontarians, consistent standards of patient care, improved access to treatment and disability and employment supports.
"Recently, the Ontario Health Technology Advisory Committee released recommendations to improve access to and standardize epilepsy care in Ontario which we strongly support as the foundation for a provincial epilepsy strategy," said Rozalyn Werner-Arc, Executive Director, Epilepsy Ontario. "On behalf of Ontarians living with epilepsy, their families and employers, we ask the government to ensure it incorporates the key role of community epilepsy organizations in the implementation of this strategy."
Better access to medication to improve seizure control
Epilepsy, the second most common neurological condition after headache, is a seizure disorder caused by sudden bursts of electrical energy in a person's brain. Up to one-third of people living with epilepsy do not have adequate seizure control, severely impacting their independence, productivity and overall quality of life. The disorder can cause significant challenges, including difficulty finding employment, loss of driving privileges, cognitive decline, memory impairment and higher mortality rates.
"Far too many Ontarians still endure seizures, along with the damage each one leaves in its wake. Today, we call upon the Ontario government to ensure its citizens have swift access to new treatments for epilepsy as soon as they become available in Canada, in order to better their control seizures and improve their health and quality of life," Werner-Arc added.
Support needed for workplace discrimination and disability
Epilepsy Action Day at Queen's Park provides individuals living with epilepsy the opportunity to speak directly to government representatives about the most pressing issues facing their community. In addition to consistent standards of care and better access to treatment, community advocates from across Ontario addressed the need for improved access to disability and employment supports.
"Many people with uncontrolled seizures experience significant difficulties in many aspects of life, including disability and discrimination issues in the workplace," said Melanie Jeffrey, a member of the epilepsy community from Simcoe County. "A deeper understanding of these issues is greatly needed among our MPPs, as is improved access to programs that recognize and support the needs of Ontarians with epilepsy in the workforce."
Community commends government for epilepsy research funding
Go here to see the original:
Ontario Epilepsy Community Urges Ontario Government to Improve Standards of Care, Access to Treatment, and Disability ...