To ensure that the medical decision-making and communication preferences of adolescents and young adults (AYAs) with advanced heart disease are known, efforts need to be stepped up to make their clinicians and caregivers aware of those preferences, according to new survey results published in JAMA Network Open. These results show that this complex patient population prefers to have an active role in their medical decision-making, with the study authors highlighting, AYA decision-making involvement is associated with important outcomes in other chronic illness groups, but little is known about the medical and end-of-life decision-making preferences of AYAs with advanced heart disease. Fifty-six patients with a median (IQR) age of 17.8 (15.8-19.0) years and 53 AYA-parent pairs were enrolled in the present study Continue reading
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