Parents of girl too ill for treatment give away £22,500 to another sick child

Posted: Published on March 7th, 2013

This post was added by Dr Simmons

The Williams family, from Conwy, launched Abigails Fund after their daughter was diagnosed at the age of three with Batten disease, an inherited degenerative disorder which eventually leaves children blind, bedridden and mentally impaired, and can be fatal.

Abigail underwent successful stem cell therapy in China in 2010, which led to a slight improvement of her symptoms, and her parents had hoped she could have further treatment in the US. But her incurable condition has worsened to the extent that Abigails parents have decided she is too poorly to travel abroad.

Shes just not well enough unfortunately over the last 12 months Abigail has got a lot more poorly, said Mr Williams.

We still owe a large debt of gratitude to the public for what they did for Abigail. Its Kyles money now his needs are more imminent than Abigails.

Hopefully people who donated will understand.

Mr Williams and his wife, 25, decided to donate the money to Kyle, even though they had never met him, after reading about an appeal by the boys parents for money to pay for treatment abroad, called Kyles Miracle Wish Fund.

It means he will be able to fly to Missouri for an operation at the St Louis Childrens Hospital on May 21, where a team of surgeons will cut abnormal nerves between Kyles legs and his spinal cord to reduce spasticity in his muscles a procedure called selective dorsal rhizotomy.

The donation from the Williams family means that they are close to reaching the 58,000 they need for the operation, physiotherapy, flights and hotel costs for his six-week stay.

Mr Weaver, 36, said: We are shocked, astounded and amazed at the Williamss generosity. We can really get going with the surgery now. This huge donation will make a huge difference to us.

But we have mixed emotions. They have helped us and I wish we could help them, but theres nothing we can do.

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Parents of girl too ill for treatment give away £22,500 to another sick child

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