Parkinson's disease grandad denied 'wonder drug' that could reverse years of damage on his body

Posted: Published on February 23rd, 2015

This post was added by Dr Simmons

A Parkinson's disease sufferer has been denied access to a so-called wonder drug that could reverse the effects of years of damage on his body.

Edward Reilly, known to his friends as Eamonn, was diagnosed with the progressive disease 16 years ago.

The Coventry grandfather has now been told the NHS will not pay for him to at least try the breakthrough drug Duodopa which could ease his symptoms.

Duodopa which is only prescribed as a last resort treatment option where other medications have failed is said to help control involuntary movements, night-time symptoms and help curtail 'off' periods.

But last year NHS England announced the drug would not be routinely available on the NHS, meaning doctors have to make long and bureaucratic applications on a case-by-case basis.

At present Eamonn, from Eastern Green, suffers with near paralysis at night, reports the Coventry Telegraph.

Suffering: Eamonn and Carol with the letter from the NHS

His wife Carol said: He hardly moves after 8.30pm. He also has a lot of off time when he cant move his legs.

The cost of treatment using Duodopa for one year would be 26,000.

Duodopa is a last resort treatment for Eamonn who has been declared unsuitable for all other treatment, due to his poor balance which has seen him hospitalised before.

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Parkinson's disease grandad denied 'wonder drug' that could reverse years of damage on his body

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