Being diagnosed with multiple sclerosis (MS) can transform even the most easygoing, unflappable individual into a full-time worrywart. Even in periods of extended remission, when symptoms are kept mercifully at bay for weeks or even months at a time, the disease has other ways of making its presence felt. Looming on the outer reaches of your consciousness, its always at-the-ready to derail your train of thought with worry about the next inevitable flare-up when will it happen, where will it happen, and how bad will it be? Its questions like these that generate the constant background hum of anxiety and fear experienced by most MS patients,43% of whichsuffer from an anxiety disorder, significantly higher than the rate seen in the general population.
It was under this pall of low-grade anxiety that I picked my way through the crowd of 6,000-plus healthcare professionals that had descended on Bostons Convention & Exhibition Center last month forHLTH 2021 an annual industry event that brings together researchers, providers, entrepreneurs, and other healthcare leaders for a series of keynotes, presentations, and networking exercises; all with the stated goal of inspiring innovation and forging partnerships in the healthcare sector.
While the goals are to be lauded, for an MS patient events like this become all the more problematic in the midst of 6,000-plus people, all shaking hands, shuffling feet, and forcing smiles for an endless procession of new acquaintances. Live music, twirling party lights, and countless eye-popping (and eardrum-bursting) displays all competed openly on the conference floor for the attendees attention.
Emerging from the throng of attendees, I spotted an open seat near the main stage and sat just as the lights dimmed for the opening ceremonies. The presentation started with a short, animated video a montage of 15 or so timely and attention-grabbing public health statistics. The statistics were a blend of todays bleak realities and tomorrows inspirational trends, and made a point of addressing some of the most historically marginalized subjects in public health, including race, inequality, mental health, and addiction.
From 2019 to 2020 we experienced the largest decline in U.S. life expectancy since World War II, the narrator boomed. Disproportionately impacting people of color. Though people of color were nearly five times more likely to be hospitalized with Covid, the majority of research neglects those communities.
63% of our younger generations suffer from significant symptoms of anxiety or depression, the narrator continued. Overdose deaths in the United States jumped nearly 30% from 2019 to 2020, with the highest increase among youth.
Although far from revelatory, the numbers were obviously impactful. Listening to the last two statistics and watching the accompanying animation of a man collapsing with a bottle of pills in his hand I couldnt help but think ofmy brother, who suffered a lifetime of mental health problems that went untreated. In the absence of quality care, he began self-medicating at an early age, and ultimately passed away from complications associated with alcohol use disorder.
Part of me was of course encouraged to see traditionally marginalized subjects like these being addressed so openly and honestly in this setting. Equally encouraging were the opening remarks made by HLTH CEO and Co-founder, Jonathan Weiner, which included uncompromising calls for progressive action and addressed the important role played by social determinants of health (SDOH) in patient outcomes.
To solve the biggest problems, leaders will need to become comfortable talking about disparities, and understanding the root cause and the various approaches that must be taken to support the health needs of different populations, Weiner said.
It was a powerful statement. And many other speakers would echo the sentiment over the coming days, with providers, CEOs, and activists all seeming to align on the need for, not only incorporating SDOH into the standard model of care, but actually addressing the inequities behind them. The conference schedule was brimming with discussions of inequality, racial justice, and SDOH. With program titles like, Systemic Health Activism: Designing for Equity; Achieving Social Justice in Health; and Is Poverty the Root of SDOH?, there was no questioning the event organizers were invested in the subject.
But, despite the encouraging amount of coverage and bold, aspirational statements, there was a part of me that wasnt so enthused. Instead, this part of me couldnt help but bristle at some of the grandiose statements about inequality and injustice.Despite all the impassioned calls to action and carefully-considered strategies and the undeniable conviction behind both the same question kept lingering in the back of my mind: Havent I heard this before?
Over the course of my decades-long career in health analytics, Ive read, heard, and thought a lot about SDOH. So its no surprise that, over the years, Ive come across some of the very same ideas and sentiments expressed at this years HLTH conference. What is a surprise, is how little has changed. To this day, as much as80% of health outcomesin the United States are driven by social determinants such as race, income, and educational attainment. To this day, our healthcare system allows the forces of inequity to run our hospitals and clinics, largely unseen and unchecked.
Its as if the industry itself had MS. Theres a breakdown taking place somewhere between the brain, where thoughts and intentions are clearly aligned, and the body, where those ideas and intentions fail to manifest as action. Unlike an actual MS patient, though, the industry doesnt seem worried. If anything, the industry professionals and decision-makers seem more confident and optimistic than ever before. And perhaps thats because, unlike multiple sclerosis, theres a cure for the inequities that plague our healthcare system. Year after year, event after event, we increase our understanding, refine our strategies, and develop new technologies that could help us identify and excise these injustices. But its time we heed our own calls, and turn from talk to action.
HLTH 2021 was encouraging. Despite the lingering sense of deja vu, this is the first time Id seen SDOH take center stage at such a major industry event. While its true not everything being said was exactly newsworthy, the focus and fervor behind them were. Even when SDOH werent the focus of a presentation, many of the speakers made a point to incorporate them into their talks in a meaningful way. And for those presentations that did focus on such topics, there was an undeniable urgency behind their words that was inspiring, even for a chronic worrier like myself. And, yes, Ill continue to worry. Ill continue to worry about my brother and the millions of people just like him who are still being left to slip through the cracks. But, alongside that worry now burns a little flame of optimism.
I feel quite certain that social determinants of health will again play a significant role in the speeches and presentations of next years HLTH conference, and other prominent healthcare events. The question is, whether the discussions will be dominated by more refined statistical findings and fiery calls to action, or real world case studies and systemic audits demonstrating tangible improvements in care.
For the first time ever, I feel certain that progresswillcome. And while I still worry about how, when, and most of allwhowill be lost in the meantime I know those details wont matter as much once weve made it there.
Continued here:
SDOH initiatives took center stage at HLTH 2021, but will they truly take shape off stage? - MedCity News
- Rally for Multiple Sclerosis Treatment Funding [Last Updated On: May 7th, 2011] [Originally Added On: May 7th, 2011]
- Breakthrough Multiple Sclerosis Treatment? [Last Updated On: May 8th, 2011] [Originally Added On: May 8th, 2011]
- Multiple Sclerosis Treatment - Mayo Clinic [Last Updated On: May 11th, 2011] [Originally Added On: May 11th, 2011]
- Tracy Macchia: Controversial MS Treatment [Last Updated On: May 14th, 2011] [Originally Added On: May 14th, 2011]
- What is Multiple Sclerosis [Last Updated On: May 19th, 2011] [Originally Added On: May 19th, 2011]
- MS Multiple Sclerosis treatment testimonial from Sanoviv Medical Institute [Last Updated On: May 20th, 2011] [Originally Added On: May 20th, 2011]
- Patient with progressive ms(paraplegia) Fmr treatment 1/4 [Last Updated On: May 22nd, 2011] [Originally Added On: May 22nd, 2011]
- New Jersey Multiple Sclerosis Treatment with Chiropractic Care [Last Updated On: May 23rd, 2011] [Originally Added On: May 23rd, 2011]
- MS Cure - Progression [Last Updated On: June 2nd, 2011] [Originally Added On: June 2nd, 2011]
- CCSVI UK Multiple Sclerosis Liberation Treatment [Last Updated On: June 2nd, 2011] [Originally Added On: June 2nd, 2011]
- Stem Cell Therapy MS: Sam Harrell and The Superbowl [Last Updated On: June 3rd, 2011] [Originally Added On: June 3rd, 2011]
- Holly Huber on Recovery: Stem Cell Therapy for Multiple Sclerosis Community Outreach Dallas, TX 2011 [Last Updated On: June 8th, 2011] [Originally Added On: June 8th, 2011]
- MS treatment sees early success [Last Updated On: June 9th, 2011] [Originally Added On: June 9th, 2011]
- CCSVI Possible cure for Multiple sclerosis [Last Updated On: June 10th, 2011] [Originally Added On: June 10th, 2011]
- MS Cure - Introduction to stem cell bone marrow transplant in Australia [Last Updated On: June 11th, 2011] [Originally Added On: June 11th, 2011]
- (Multiple Sclerosis Cure) Change Your Thinking? (Multiple Sclerosis Cure) [Last Updated On: June 12th, 2011] [Originally Added On: June 12th, 2011]
- Essiac cancer treatment herbal tincture, Ms Caisse...from The Secrets of Eden [Last Updated On: June 12th, 2011] [Originally Added On: June 12th, 2011]
- MS walking treatment breakthrough [Last Updated On: June 14th, 2011] [Originally Added On: June 14th, 2011]
- multiple sclerosis natural treatment | Kathy Canada Testimonial [Last Updated On: June 18th, 2011] [Originally Added On: June 18th, 2011]
- CCSVI Surgery India - Liberation Procedure Multiple Sclerosis Treatment in India [Last Updated On: June 29th, 2011] [Originally Added On: June 29th, 2011]
- XCell-Center MS CCSVI Liberation Angioplasty Treatment Results E.Schuurman 18_01_11 [Last Updated On: July 1st, 2011] [Originally Added On: July 1st, 2011]
- MS Cure - 7PM Project Carmel Turner MS Stem Cell Treatment [Last Updated On: July 9th, 2011] [Originally Added On: July 9th, 2011]
- MS Update! Tysabri or Gilenya? [Last Updated On: July 10th, 2011] [Originally Added On: July 10th, 2011]
- What causes BSE, CJD [Last Updated On: July 15th, 2011] [Originally Added On: July 15th, 2011]
- Kath Bartlett, MS, LAc Balance Method Acupuncture [Last Updated On: July 16th, 2011] [Originally Added On: July 16th, 2011]
- MS Cure - 730 report ben leahy carmel turner ms stem cell treatment [Last Updated On: July 17th, 2011] [Originally Added On: July 17th, 2011]
- CCSVI LIberation Treatment Tokuda [Last Updated On: July 18th, 2011] [Originally Added On: July 18th, 2011]
- FOX News Interview on the O'Reilly Factor - Treatment of Women in Islam [Last Updated On: July 18th, 2011] [Originally Added On: July 18th, 2011]
- CCSVI treatment bloopers holy crap [Last Updated On: July 18th, 2011] [Originally Added On: July 18th, 2011]
- Tarah's CCSVI Venoplasty. Dr McGuckin Explaining procedure findings [Last Updated On: July 19th, 2011] [Originally Added On: July 19th, 2011]
- Cancer Cure: The One-Minute Cure For Cancer, MS [Last Updated On: July 24th, 2011] [Originally Added On: July 24th, 2011]
- Not Ready to Cheer CCSVI Trials [Last Updated On: July 29th, 2011] [Originally Added On: July 29th, 2011]
- New Oral Treatment for MS [Last Updated On: July 30th, 2011] [Originally Added On: July 30th, 2011]
- 27/07/2011 - MS patients seek controversial treatment [Last Updated On: August 1st, 2011] [Originally Added On: August 1st, 2011]
- MS Cure - 11 I am still walking [Last Updated On: August 5th, 2011] [Originally Added On: August 5th, 2011]
- Upcoming Treatments for MS - Pt 1 -MSRA Public Lecture - Dr Suzanne Hodgkinson [Last Updated On: August 10th, 2011] [Originally Added On: August 10th, 2011]
- Stem Cells for MS Community Outreach: Patient Judi Lecoq - Dallas, TX 2011 [Last Updated On: August 18th, 2011] [Originally Added On: August 18th, 2011]
- Stem Cell Treatment for Multiple Sclerosis - Community Outreach, San Diego: David Oliver [Last Updated On: August 19th, 2011] [Originally Added On: August 19th, 2011]
- New Study Tests Possible Treatment for MS [Last Updated On: August 25th, 2011] [Originally Added On: August 25th, 2011]
- Professor Dimitrios Karussis: Treating MS [Last Updated On: August 26th, 2011] [Originally Added On: August 26th, 2011]
- walking with MS before CCSVI treatment.wmv [Last Updated On: August 27th, 2011] [Originally Added On: August 27th, 2011]
- Suzy Cohen Discusses The Liberation Treatment for MS [Last Updated On: September 14th, 2011] [Originally Added On: September 14th, 2011]
- Multiple Sclerosis MS People - Amazing New Treatment [Last Updated On: September 15th, 2011] [Originally Added On: September 15th, 2011]
- Multiple Sclerosis Alternative Treatment [Last Updated On: September 17th, 2011] [Originally Added On: September 17th, 2011]
- CLEAR scoliosis treatment, Dr. Culpepper (MS) [Last Updated On: September 22nd, 2011] [Originally Added On: September 22nd, 2011]
- Liberation treatment for MS [Last Updated On: September 23rd, 2011] [Originally Added On: September 23rd, 2011]
- 44b - My Lyme disease and rheumatoid arthritis journey - Miraculous CCSVI treatment for MS sufferers [Last Updated On: September 24th, 2011] [Originally Added On: September 24th, 2011]
- A Closer Look at Gilenya - The First Oral Treatment for MS [Last Updated On: September 28th, 2011] [Originally Added On: September 28th, 2011]
- Unequal Treatment Drives Disability Rights Movement [Last Updated On: September 28th, 2011] [Originally Added On: September 28th, 2011]
- Multiple Sclerosis - The Nebraska Medical Center [Last Updated On: September 29th, 2011] [Originally Added On: September 29th, 2011]
- Testimonial for CCSVI Treatment Excel Heart Center Mexico -- Tanya Reay [Last Updated On: September 30th, 2011] [Originally Added On: September 30th, 2011]
- Current thinking on what causes MS - Pt 1 - MSRA Public Lecture -Prof Graeme Stewart [Last Updated On: October 2nd, 2011] [Originally Added On: October 2nd, 2011]
- Current and emerging therapies in MS - Part 02 (How do these treatments work?) [Last Updated On: October 2nd, 2011] [Originally Added On: October 2nd, 2011]
- MS Richard Humphries before and after treatment for Multiple Sclerosis with stem cells [Last Updated On: October 3rd, 2011] [Originally Added On: October 3rd, 2011]
- Matthew - CCSVI and his Liberation Treatment [Last Updated On: October 8th, 2011] [Originally Added On: October 8th, 2011]
- Multiple Sclerosis - Myelin Repair - Video [Last Updated On: October 14th, 2011] [Originally Added On: October 14th, 2011]
- MS Auto Immune vs CCSVI Treatment Simple Pictures by Berukoff - Video [Last Updated On: October 23rd, 2011] [Originally Added On: October 23rd, 2011]
- New Promising Treatment for Those Living with Multiple Sclerosis - Video [Last Updated On: October 29th, 2011] [Originally Added On: October 29th, 2011]
- Stem cells to treat MS - Pt 2 - MSRA Public Lecture - A/Prof Richard Burt - Video [Last Updated On: October 30th, 2011] [Originally Added On: October 30th, 2011]
- New hope for treating multiple sclerosis - Video [Last Updated On: October 31st, 2011] [Originally Added On: October 31st, 2011]
- CCSVI Multiple sclerosis Breakthrough/cure - Video [Last Updated On: October 31st, 2011] [Originally Added On: October 31st, 2011]
- Inhuman Treatment of Wheelchair bound Multiple Sclerosis Patient in Canadian Care Home - Video [Last Updated On: November 9th, 2011] [Originally Added On: November 9th, 2011]
- MS treatment movie Cells4health.mp4 - Video [Last Updated On: November 10th, 2011] [Originally Added On: November 10th, 2011]
- Racing to the Cure for MS: Myelin Repair Foundation Celebrates MS Awareness Week - Video [Last Updated On: November 12th, 2011] [Originally Added On: November 12th, 2011]
- [Symptoms of Multiple Sclerosis] - Video [Last Updated On: November 12th, 2011] [Originally Added On: November 12th, 2011]
- Multiple Sclerosis Treated with Adult Stem Cells - Video [Last Updated On: November 13th, 2011] [Originally Added On: November 13th, 2011]
- Stem cells to treat MS - Pt 1 - MSRA Public Lecture - A/Prof Richard Burt - Video [Last Updated On: November 16th, 2011] [Originally Added On: November 16th, 2011]
- Multiple Sclerosis A Natural Treatment - Video [Last Updated On: November 16th, 2011] [Originally Added On: November 16th, 2011]
- My MS and Stem Cell Treatment - Video [Last Updated On: November 16th, 2011] [Originally Added On: November 16th, 2011]
- CCSVI Liberation News Reports - Video [Last Updated On: November 20th, 2011] [Originally Added On: November 20th, 2011]
- Stem Cells for MS Community Outreach: Patient Sam Harrell - Dallas, TX 2011 - Video [Last Updated On: November 21st, 2011] [Originally Added On: November 21st, 2011]
- Arthur S13 E2-1 - The Silent Treatment - Video [Last Updated On: November 27th, 2011] [Originally Added On: November 27th, 2011]
- Holly Huber on Recovery: Stem Cell Therapy for Multiple Sclerosis Community Outreach San Diego CA - Video [Last Updated On: December 3rd, 2011] [Originally Added On: December 3rd, 2011]
- CCSVI - Video [Last Updated On: December 3rd, 2011] [Originally Added On: December 3rd, 2011]
- My Sister's Experience with Liberation Treatment for Multiple Sclerosis PART 2/2 - Video [Last Updated On: December 5th, 2011] [Originally Added On: December 5th, 2011]
- Multiple Sclerosis -- Treatment LDN story - Video [Last Updated On: December 7th, 2011] [Originally Added On: December 7th, 2011]
- ABC News - Multiple Sclerosis effectively treated by a new acoustic medical device. - Video [Last Updated On: December 9th, 2011] [Originally Added On: December 9th, 2011]
- MS Patient After Stem Cell Therapy - Video [Last Updated On: December 10th, 2011] [Originally Added On: December 10th, 2011]
- Multiple Sclerosis - Video [Last Updated On: December 12th, 2011] [Originally Added On: December 12th, 2011]
- Journey of Connective Tissue, Autoimmune disease, steroid treatment updates. - Video [Last Updated On: December 22nd, 2011] [Originally Added On: December 22nd, 2011]