The SHaRe Cardiomyopathy Registry

SHaRe is a multi-center, international repository of clinical and laboratory data on individuals and families with genetic heart disease developed as a collaboration with several world-leading cardiovascular centers.

By building the worlds most robust database of its kind, cardiovascular geneticists and research-based cardiologists will be able to expand their knowledge base and generate fresh insights and research initiatives supporting the development of more targeted and effective approaches in the treatment of genetic heart disease.

Funded by research grants from MyoKardia, Inc., SHaRe brings together an expert group of experienced and knowledgeable cardiologists and geneticists from the United States, Europe, Australia, and South America with a passion for helping people with genetic heart disease.

Through our website and Affairs of the Heart patient conferences, SHaRe seeks to educate patients and family members about the scientific findings from the registry and about advances in the diagnosis, treatment and management of HCM and DCM.

Listen to podcast discussing the benefits of a cardiomyopathy registry.

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The SHaRe Cardiomyopathy Registry